On Saturday the 31st of October 2009 we will organise the annual CMTC meeting in the Netherlands and is open for members, their families and doctors from any place. The location is:
Hotel Leusden
Philipsstraat 18
3833 LC Leusden NL
Tel. +31 (0)33 - 4 345 345
Fax. +31 (0)33 - 4 345 300


Registration for this meeting will be possible later on.

The CMTC USA meeting is in Washington DC on Saturday afternoon the 18th of July 2009 (from 13 until 17 hours) and is open for members, their families and doctors from any place. The location is:
Bethesda North Marriott Hotel & Conference Center
5701 Marinelli Road
Bethesda, Maryland 20852 USA
Phone: 1-301-822-9200
Fax: 1-301-822-9201
Toll-free: 1-800-859-8003



Dr. Maurice van Steensel, one of our medical advisors, will join the president Lex van der Heijden. Members have the opportunity to get a free diagnosis and to meet other patients and members. You have the option to have a free diagnosis (for each patient half an hour is reserved).
Registration can be arranged by sending an email message to the president ( mailto:president@cmtc.nl ) indicating with how many people you intend to come including the age of the children (for catering purposes) and if you would like to have a free diagnosis.
Doctors are also very welcome!


The password of the member area has changed. Members who have paid their contribution will gain access by contacting the president.


We are currently working on raising a CMTC USA Chapter.


We are currently investigating collaboration with the Dutch organisations for Klippel-Trenaunay, Sturge-Weber and Hevas with objectives such as to improve the exchange of knowledge and experience and further professionalisation.


On the 8th of November 2008 we have organised our annual meeting in the Netherlands. Drs. Oduber, she works on her PhD with the subject vascular malformations such as CMTC, gave a presentation and answered many questions during two hours. The report of this meeting will be in the newsletter of October 2008 and the presentations will be available in the member area of this website.

For the kids we had reserved a separate room with games (Wii, Playstation, drawing etc.) which turned out to be a big success.
Several new members, such as a member from the USA, and representatives of other organisations have witnessed this meeting.

For members who could not be present during this meeting, especially foreign members, we had organised a 'webcast' in order to enable them to witness the meeting with vision and sound.


Several CMTC patients from Australia, Belgium, Canada, Croatia, Denemark, Greece, Italy, Norway, United Kingdom and the USA have been to the Netherlands for the free medical examination. Their experiences have been described in the CMTC newsletters.


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