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Medical advisors
Charlène Oduber, MD, PhD
Dr. Charlène Oduber completed her PhD 'Clinical aspects of vascular malformations and deregulated growth' on 12th January 2011. A clinical and genetic research study into inherited blood vessel abnormalities in combination with localised growth disturbances of bone and/or soft tissue. This is a collaboration between the Academic Medical Centre (AMC), Amsterdam and the MUMC. Charlène is also medical advisor to the Netherlands Klippel-Trenaunay Foundation and has given various national and international presentations and for which a number of prizes have been awarded. Also co-author of a chapter in the Phlebology study reference of prof. Neuman.
Dr. Charlène Oduber completed her PhD 'Clinical aspects of vascular malformations and deregulated growth' on 12th January 2011. A clinical and genetic research study into inherited blood vessel abnormalities in combination with localised growth disturbances of bone and/or soft tissue. This is a collaboration between the Academic Medical Centre (AMC), Amsterdam and the MUMC. Charlène is also medical advisor to the Netherlands Klippel-Trenaunay Foundation and has given various national and international presentations and for which a number of prizes have been awarded. Also co-author of a chapter in the Phlebology study reference of prof. Neuman.
Prof. Arnold Oranje, MD, PhD
Professor dr. Arnold Oranje is consultant General Dermatology and Pediatric Dermatology and Professor in Pediatric Dermatology at the Erasmus Medical Center Rotterdam (the Netherlands). Oranje was acting Director of the Department of Dermatology and Venereology from 1999-2001 and has reorganized the basic training in Dermatology in 2000. Now he is staff member of the Department of Pediatrics. He has written more than 400 scientific papers. He is co-editor of the Textbook of Pediatric Dermatology (Harper, Oranje and Prose, 2000 and 2006) and is also editor of the Dutch Handbook Pediatric Dermatology (Kinderdermatologie). Finally he has won several prizes for his duties for (Pediatric) Dermatology.
Professor dr. Arnold Oranje is consultant General Dermatology and Pediatric Dermatology and Professor in Pediatric Dermatology at the Erasmus Medical Center Rotterdam (the Netherlands). Oranje was acting Director of the Department of Dermatology and Venereology from 1999-2001 and has reorganized the basic training in Dermatology in 2000. Now he is staff member of the Department of Pediatrics. He has written more than 400 scientific papers. He is co-editor of the Textbook of Pediatric Dermatology (Harper, Oranje and Prose, 2000 and 2006) and is also editor of the Dutch Handbook Pediatric Dermatology (Kinderdermatologie). Finally he has won several prizes for his duties for (Pediatric) Dermatology.
Prof. Maurice van Steensel, MD, PhD
Maurice van Steensel (1969) studied medicine at the Catholic University of Nijmegen. Both during and after his study he worked as a researcher in the department of Clinical Genetics taking part in molecular research. The subject of hereditary skin disorders had already caught his interest and when the opportunity arose he transferred from Genetics to Dermatology to work on his academic promotion and to train as a dermatologist. Together with prof. Peter Steijlen he ran the outpatient clinic for hereditary skin conditions in Nijmegen. In 2003 he moved on to the Department of Dermatology at the University of Maastricht and in 2005 received his doctorate in the molecular genetics of hereditary hair disease. Dr. van Steensel completed his dermatology training in 2006. By now he was already leading the research program into hereditary skin disease and the Laboratory of Experimental Dermatology that he had established together with Dr. Michel van Geel in 2003. At the University Medical Centre Maastricht there are now three separate consultancy sessions for hereditary skin disorders which are well attended by patients from all over the world.
Maurice van Steensel (1969) studied medicine at the Catholic University of Nijmegen. Both during and after his study he worked as a researcher in the department of Clinical Genetics taking part in molecular research. The subject of hereditary skin disorders had already caught his interest and when the opportunity arose he transferred from Genetics to Dermatology to work on his academic promotion and to train as a dermatologist. Together with prof. Peter Steijlen he ran the outpatient clinic for hereditary skin conditions in Nijmegen. In 2003 he moved on to the Department of Dermatology at the University of Maastricht and in 2005 received his doctorate in the molecular genetics of hereditary hair disease. Dr. van Steensel completed his dermatology training in 2006. By now he was already leading the research program into hereditary skin disease and the Laboratory of Experimental Dermatology that he had established together with Dr. Michel van Geel in 2003. At the University Medical Centre Maastricht there are now three separate consultancy sessions for hereditary skin disorders which are well attended by patients from all over the world.
Wouter W. van der Schaar, MD, PhD
Medical psychologist/psychotherapist
From 1969 to 2000 clinical psychologist at the Dermatology Department of the former University of Amsterdam hospital, Binnengasthuis and later, until retirement, at the Academic Medical Centre (AMC), Amsterdam. Aim: To widen the level of support for, and research into, the psychological factors that influence the course and cause of (chronic) skin diseases. An academic promotion also followed within this psycho-dermatological area. Advisor to a number of dermatology patient organisations.
Aside from medical psychology, also involved in treatment of Post-Traumatic Stress Disorder (PTSD) for victims at home and abroad and worked for 10 years at the Dutch Obesity Clinic, Hilversum. Still active in the treatment of patients with diverse problems.
Medical psychologist/psychotherapist
From 1969 to 2000 clinical psychologist at the Dermatology Department of the former University of Amsterdam hospital, Binnengasthuis and later, until retirement, at the Academic Medical Centre (AMC), Amsterdam. Aim: To widen the level of support for, and research into, the psychological factors that influence the course and cause of (chronic) skin diseases. An academic promotion also followed within this psycho-dermatological area. Advisor to a number of dermatology patient organisations.
Aside from medical psychology, also involved in treatment of Post-Traumatic Stress Disorder (PTSD) for victims at home and abroad and worked for 10 years at the Dutch Obesity Clinic, Hilversum. Still active in the treatment of patients with diverse problems.
Prof. Chantal van der Horst, MD, PhD
Since the beginning of her training as plastic surgeon in 1985, Prof. dr. Van der Horst has always had an interest in the study and treatment of haemangioma and vascular malformations. She also has a special interest in congenital abnormalities in general. From 1989 she has been working at the Amsterdam Medical Centre. In 1990 she helped organise a working group for association of Congenital Vascular Anomalies for the ISSVA (International Society for Study of Vascular Anomalies) in Amsterdam. Since then she has been actively involved internationally in Congenital Vascular Anomalies. Her thesis titled "Considerations on port-wine stains and their Treatment" speaks for itself.
Over the years she has done more collaborative research and published papers on congenital vascular malformations. There is collaboration between specialists in Genetics, Dermatology, plastic Surgeons, Vascular Surgeons, radiologists and also patients. By all joining force we are slowly beginning to understand the effects of congenital vascular defects for patients. Also there is more and more insights into the causes and origins of vascular abnormalities, but these trends are unfortunately progressing slowly.
Since 2000 Prof. dr. Van der Horst is a professor in Plastic Surgery at the Academic Medical Center in Amsterdam. Here she trains young plastic surgeons who of course also get knowledge of congenital vascular anomalies.
Since the beginning of her training as plastic surgeon in 1985, Prof. dr. Van der Horst has always had an interest in the study and treatment of haemangioma and vascular malformations. She also has a special interest in congenital abnormalities in general. From 1989 she has been working at the Amsterdam Medical Centre. In 1990 she helped organise a working group for association of Congenital Vascular Anomalies for the ISSVA (International Society for Study of Vascular Anomalies) in Amsterdam. Since then she has been actively involved internationally in Congenital Vascular Anomalies. Her thesis titled "Considerations on port-wine stains and their Treatment" speaks for itself.
Over the years she has done more collaborative research and published papers on congenital vascular malformations. There is collaboration between specialists in Genetics, Dermatology, plastic Surgeons, Vascular Surgeons, radiologists and also patients. By all joining force we are slowly beginning to understand the effects of congenital vascular defects for patients. Also there is more and more insights into the causes and origins of vascular abnormalities, but these trends are unfortunately progressing slowly.
Since 2000 Prof. dr. Van der Horst is a professor in Plastic Surgery at the Academic Medical Center in Amsterdam. Here she trains young plastic surgeons who of course also get knowledge of congenital vascular anomalies.
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