• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website
Mission

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

Read more

Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

Read more

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Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!

 

Register as member

We are very busy developing a new website that works well on smartphones/tablets, with a lot of news and new functionality! 

We will be launching our new website at the end of April 2020 and this new website will include:

  1. Around 500 articles per language.
  2. Around 2800 photos.
  3. More than 100 photo albums.
  4. More than 100 videos.
  5. Search function (for the public and for members).
  6. And much more!

Certain parts of this website are not operational because we pay full attention to our new website.

jezz

Upcoming Events

No events found

Twitter

CMTC-OVM RT @RareConnect: Article from the @ChildMindInst for adults to help with talking to kids about coronavirus. https://t.co/M5lFeTBaDO
Saturday, 28 March 2020 08:10
CMTC-OVM RT @vascern: Great work @eurordis!👍 Their page includes @vascern's Covid19 recommendations plus resources and information from the other…
Friday, 27 March 2020 11:23
CMTC-OVM @PharosKennis Goed werk!
Wednesday, 25 March 2020 21:19