• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website
Mission

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

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Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

Read more

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Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!

 

Register as member

This website complies with the requirements which the Dutch Government presents to the use of "cookies".
In this context, "cookies" are small files which are placed on your computer to help the website analyze how visitors use the website and to remember certain information if the user comes back. The information generated by the cookie is stored on secure environments. We use this information, for example, especially for statistics so that we can see what has been the effect of a marketing action in terms of the number of visitors on our website.

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Upcoming Events

Jul
6

06-07-2019 0909:0707 - 1111:0707

Nov
1

0808:1111 01-11-2019 - 1010:1111 02-11-2019

Twitter

CMTC-OVM @PaulBlokhuis @ggz_arkin Lijkt mij verstandig op voorhand met zorg professionals en patiënten organisaties om de ta… https://t.co/9sIuaNoPcB
About 22 hours ago
CMTC-OVM Over 70 people from Austria, Belgium, Germany, the Netherlands and the United Kingdom have registered for our globa… https://t.co/1h8tPSu83n
Monday, 24 June 2019 05:59
CMTC-OVM @M1Kamphuis @elsjonker CMTC is aangeboren ... dus een kind met CMTC kan eruitzien alsof het is mishandeld. Hebben w… https://t.co/cmBIBzKnSg
Saturday, 22 June 2019 06:23