{div class:qh-embed}

With special thanks to Mark Knopfler to be allowed to use his music!


The reputation of an organization is vital - especially when it comes to rare diseases like CMTC. We strive in many ways to increase our brand awareness and networking. One way to do this is by participating in trade fairs and conferences which is made possible by our association with various umbrella organizations. The selection of these events is based upon the expected and intended audience.

Since CMTC is a rare disorder, we try whenever possible to take part in (international) conferences where the focus is on rare diseases.

As a result of years of international cooperation, we have been offered free genetic research in Canada!