NORD 2016 – Washington DC
On 17 and 18 October 2016, the American organization for rare diseases NORD organised the annual conference in Washington DC. On behalf of CMTC-OVM US, Becky Gallis took part in this conference, and Lex van der Heijden attended on behalf of CMTC-OVM Netherlands organization. The number of participants was around 600. Below is a short […]
NORD 2015 – Washington DC
The American organization for rare diseases NORD held their annual conference on October 21-22, 2015, in Washington DC. The number of participants was more than 500 from all over the world. We as the CMTC-OVM organization have been for many years member of this organization. Representatives of the European organization for rare diseases Eurordis and […]
NORD 2013 – Washington DC
From October 6 to October 9, 2013, the U.S. organization for rare diseases, NORD, in collaboration with the American organization DIA, organized a conference in Washington DC. Becky Gallis from the CMTC-OVM US organization and Lex van der Heijden from the global CMTC-OVM organization both took part in this conference. During this period the U.S. […]
NORD 2012 – Washington DC
From 22 to 24 October, the National Organization for Rare Disorders in the USA (NORD) in collaboration with Drug Information Association (DIA) and conference with the theme “Shaping the future now.” The president of the American CMTC-OVM Becky Gallis and Lex van der Heijden have visited this conference. Lex had visited this conference in the […]
NORD 2006 – Washington DC
On behalf of our association Lex van der Heijden visited the annual National Organization for Rare Disorders (NORD) Conference in Washington DC in the USA. The conference started on September 28 evening and lasted until October 1 to about noon.By storm in Washington Lex had a night in New York at the airport and could […]
ICORD 2019 – Tel Aviv
On 11, 12 and 13 November 2019, the global ICORD conference was organised in Tel Aviv, Israel in close cooperation with many Israeli organizations such as the Ministry of Health. The first day was mainly devoted to all kinds of genetic topics. One of the speakers was the Dutch professor Prof. Dr. Han Brunner. Some […]
ICORD 2014 – Ede
On 7-9 October 2014 we attended as organization the Global Conference of ICORD (International Conference on Rare Diseases & Orphan Drugs www.icord.es), which was organized this time in the Netherlands. The theme this year was ‘ the social value of prevention, diagnosis and treatment of rare diseases ‘. Around 125 people from South America, New […]
ICORD 2010 – Buenos Aires
The iCord global conference on rare diseases and “orphaned” drugs (drugs for people with rare diseases) was held from 18 to 20 March, 2010 in Buenos Aires, Argentina. For background information visit www.icord.es. I arrived a few days earlier to meet with one of our two patients in South America, one of whom lives in […]
Global Skin Foundation 2019 – Milan
The Canadian Global Skin Foundation organised two Congresses in Milan (Italy) from 5-9 June 2019.The first congress was held on the 5th and 6th of June and was organized for representatives involved with rare skin disorders (RareDERM). The second Congress was on the 7th and 8th, and partly on the 9th. and was intended for […]
Genetic Alliance 2017 – Washington DC
The Genetic Alliance organization exists 30 years in 2017. This was celebrated with a two-day Conference in Washington DC on 9 and 10 March with about 150 participants. The theme of the Conference was ‘co-creating a healthy future’. The beginning of the conference was a bit unusual: after the opening speech by Sharon Terry (President […]
