Events

Overview of our events
Member conference

Every year we organize various (international) events for both our members and non-members.

Worldwide Family Day

Our Family Day is designed for the whole family to spend a relaxing day together and get to know other patients and families in an informal atmosphere.

This day is very popular among our members and families even drive more than 2500 km to attend this day!

Our Family Day was planned in 2020 in Efteling, but due to the Corona / COVID-19 virus, this day cannot take place in 2020.

We announce this Family Day by email to our members, social media channels and in the calendar on our homepage.

More information

Worldwide member conference Netherlands

Our global conference in the Netherlands in a beautiful, peaceful environment in the forest is the time for many to receive annual personal medical advice, get the latest information, meet other patients and families in a relaxed atmosphere and have fun.

Since 1997 we have been bringing people together and we have received people from all over the world such as Belgium, Brazil, Canada, Denmark, Germany, England, Greenland, Hong Kong, Japan, Norway, Slovakia, USA and Sweden.

We had planned 24 October for 2020 but due to the Corona / COVID-19 virus, this conference became an online conference.

We will announce this Conference by email to our members, social media channels and in the calendar on our homepage.

More information

Webinars for members

In 2021 we started with online webinars for members. These are intended to meet each other online and to share knowledge and information both among themselves and from within our organization.

As a result, members can not only keep abreast of all kinds of developments and ask questions in the meantime. In this way, we also enable members who cannot be physically present during our conference to keep up.

We announce these webinars via email to our members, social media channels and in the calendar on our homepage.

Public webinars

In 2021 we started with public webinars for interested parties (think of patients, families and healthcare providers, for example not being a member). These are intended to meet each other online and to share knowledge and information in general.

This allows interested parties to be informed about all kinds of developments and ask questions.

We announce these webinars via our social media channels and in the calendar on our homepage.

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