Member registration

Membership offers many advantages

You can sign up as a member of our organization with the following main benefits:

  1. Access to the entire website with a lot of video material including presentations and presentations.
  2. Access to our worldwide conference in the Netherlands and, for example, to meet many other patients and families, free personal medical advice and many other possibilities.
  3. Access to our worldwide Family Day in the Netherlands and in a fun environment to meet other patients and families.

Membership costs only euro 35 per calendar year.

If you register as a member of our organization, we ask you to provide personal information. This information is stored in our administration and used to provide our services to you and to inform you about our meetings and activities.

After completing the form below for membership and donorship, the following steps are taken:

  1. You will receive an e-mail with an electronic invoice. You still have no access to our website.
  2. Once this invoice has been paid, you will receive a confirmation that you have paid and you will have access to the closed part of our website (and you will have access to our annual Conference and Family Day as a member).

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