Rare disorders Kenya & CMTC-OVM

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Rare disorders Kenya & CMTC-OVM

International collaboration

One of our members lives in Kenya and is not only active in the Kenyan organization for rare diseases, but she is also one of our Patient Advocates. We finally met in person during the Canadian Organization for Rare Diseases International Conference in Toronto in 2019.

It is high time to really start working together with the aim to help patients with CMTC and other blood vessel diseases and their families where possible.

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