We, as a world-wide organization, would also like to offer assistance to other organizations for rare diseases which may have a relationship with CMTC. TBRS, described in 2014, is a newly identified rare disease. There are currently very few diagnosed individuals. (In Netherlands, as of December 2015 there is a total of 3 people). Joining an already existing organization can give a head start to a new organization (for example, by making use of existing facilities such as a website).

TBRS and CMTC can both involve overgrowth. CMTC, however, can also involve undergrowth and asymmetry of the body (where one side of the body grows more or less than the other side). For examples, please see CMTC photo gallery