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https://www.cmtc.nl/wp-content/uploads/2020/04/epagsnl-201903-1.jpg1200383On 19 March 2019 the first VSOP meeting took place with fifteen Dutch patient representatives involved in the European Patient Advocacy Groups (ePAGs), part of European Reference Networks (ERNs). ERNs connect the recognised centres of excellence for rare diseases of the European Member States in order to facilitate cooperation in the field of care and […]