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</html><thumbnail_url>https://www.cmtc.nl/wp-content/uploads/2020/04/question-marks-1.jpg</thumbnail_url><thumbnail_width>1920</thumbnail_width><thumbnail_height>1357</thumbnail_height><description>In August 2019 we conducted a global survey in order to determine the needs of patients and families. The main results of our global survey are described below. What type of support do you need? Meeting other patients and families to exchange knowledge and experience (63 %). Information about possible treatments (54 %). Personal medical [&hellip;]</description></oembed>
