{"id":655,"date":"2020-04-07T14:58:18","date_gmt":"2020-04-07T14:58:18","guid":{"rendered":"https:\/\/www.cmtc.nl\/?page_id=655"},"modified":"2026-01-23T17:01:34","modified_gmt":"2026-01-23T16:01:34","slug":"european-patient-advocay-groups-epags","status":"publish","type":"page","link":"https:\/\/www.cmtc.nl\/en\/pedia\/pedia-other\/european-patient-advocay-groups-epags\/","title":{"rendered":"European Patient Advocay Groups (ePAG’s)"},"content":{"rendered":"

EURORDIS wants patient organisations to participate in decision-making processes in the European Reference Network (ERN) so that patients are represented.<\/p>\n

For this reason, EURORDIS has developed a European Patient Advocacy Group for each ERN disease grouping. ePAGs will bring together elected patient representatives and affiliated organisations to ensure that the patient’s\u00a0voice is heard during the ERN development process.<\/p>\n

It is important that patient representatives and clinicians negotiate how they work together in the new ERN-system. EURORDIS will continue to support patient representatives in the development of this approach and in ensuring the development of ePAGs.<\/p>\n

Our organisation is represented in the following\u00a0ePAGs:<\/p>\n

14-rare skin disorders.<\/p>\n

18-rare multi-systemic vascular diseases (VASCERN)<\/a><\/p>\n

More information about ePAG’s<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

EURORDIS wants patient organisations to participate in decision-making processes in the European Reference Network (ERN) so that patients are represented. For this reason, EURORDIS has developed a European Patient Advocacy Group for each ERN disease grouping. ePAGs will bring together elected patient representatives and affiliated organisations to ensure that the patient’s\u00a0voice is heard during the […]<\/p>\n","protected":false},"author":2,"featured_media":2116,"parent":651,"menu_order":3,"comment_status":"closed","ping_status":"closed","template":"aw-modules\/awcf_create_page_templates_with_elementor_content\/page-templates\/page-aw-page-template-67351.php","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-655","page","type-page","status-publish","has-post-thumbnail","hentry"],"acf":[],"yoast_head":"\nEuropean Patient Advocay Groups (ePAG's) - CMTC-OVM<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.cmtc.nl\/en\/pedia\/pedia-other\/european-patient-advocay-groups-epags\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"European Patient Advocay Groups (ePAG's) - CMTC-OVM\" \/>\n<meta property=\"og:description\" content=\"EURORDIS wants patient organisations to participate in decision-making processes in the European Reference Network (ERN) so that patients are represented. 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