{"id":659,"date":"2020-04-07T14:58:19","date_gmt":"2020-04-07T14:58:19","guid":{"rendered":"https:\/\/www.cmtc.nl\/?page_id=659"},"modified":"2026-01-23T17:00:50","modified_gmt":"2026-01-23T16:00:50","slug":"european-reference-networks-erns","status":"publish","type":"page","link":"https:\/\/www.cmtc.nl\/en\/pedia\/pedia-other\/european-reference-networks-erns\/","title":{"rendered":"European Reference Networks (ERN&#8217;s)"},"content":{"rendered":"<p>It can be a challenge to provide highly specialised treatment or care to patients with complex conditions.<\/p>\n<p>This is especially true in rare diseases. This challenge is due both to the scarcity of expertise and to the spread of small patient populations in the EU, sometimes in isolated locations where expertise does not exist or is inaccessible.<\/p>\n<p>At the beginning of 2017, the European Commission approved the first European Reference Networks (ERNs). The ERNs offer a unique opportunity for physicians to work cross-border in healthcare in Europe.<\/p>\n<p>European Reference Networks (ERNs) create a clear governance structure for knowledge exchange and care coordination across the European Union to improve access to diagnosis and treatment, as well as the provision of high-quality healthcare for patients. They are networks of centres of excellence and care providers, organised across borders.<\/p>\n<p><a href=\"https:\/\/www.youtube.com\/watch?v=K1tzUfBJ3jA&amp;feature=youtu.be\" target=\"_blank\" rel=\"noopener noreferrer\">Video 1 ERN&#8217;s<\/a><\/p>\n<p><a href=\"https:\/\/vascern.eu\/about-vascern\/ern\/\" target=\"_blank\" rel=\"noopener noreferrer\">Video 2 ERN&#8217;s<\/a><\/p>\n<p><a href=\"https:\/\/audiovisual.ec.europa.eu\/en\/video\/I-193046\" target=\"_blank\" rel=\"noopener noreferrer\">How can patients and health professionals benefit from the ERNs? In all EU languages.<\/a><\/p>\n<div class=\"_3d-flip-book  fb3d-fullscreen-mode full-size\" data-id=\"28784\" data-mode=\"fullscreen\" data-title=\"false\" data-template=\"short-white-book-view\" data-lightbox=\"dark-shadow\" data-urlparam=\"fb3d-page\" data-page-n=\"0\" data-pdf=\"\" data-tax=\"null\" data-thumbnail=\"\" data-cols=\"3\" data-book-template=\"default\" data-trigger=\"\"><\/div><script type=\"text\/javascript\">window.FB3D_CLIENT_DATA = window.FB3D_CLIENT_DATA || [];FB3D_CLIENT_DATA.push('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');window.FB3D_CLIENT_LOCALE && FB3D_CLIENT_LOCALE.render && FB3D_CLIENT_LOCALE.render();<\/script>\n<p><a href=\"https:\/\/audiovisual.ec.europa.eu\/en\/video\/I-191813\" target=\"_blank\" rel=\"noopener noreferrer\">Testimony from Ilaria: explaining ERN from a patient point of view<\/a><\/p>\n<p><a href=\"https:\/\/audiovisual.ec.europa.eu\/en\/video\/I-191812\" target=\"_blank\" rel=\"noopener noreferrer\">Presentation by 4 ERN coordinators: Rare diseases: how the European Reference Networks support health professionals<\/a><\/p>\n<p>More information: <a href=\"https:\/\/ec.europa.eu\/health\/ern_en\">https:\/\/ec.europa.eu\/health\/ern_en<\/a><\/p>\n<p><a href=\"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2024\/12\/ern_2024_evaluation_report_en.pdf\" target=\"_blank\" rel=\"noopener\">ERN Evaluation 2024<\/a><\/p>\n<h2>Overview ERN&#8217;s<\/h2>\n<p>We are affiliated as an organisation with the following ERNs :<\/p>\n<p><a href=\"https:\/\/ern-skin.eu\/\">SKIN<\/a> (where our ERN is located in the Erasmus Medical Centre in Rotterdam, Prof. Dr. Suzanne Pasmans is one of our medical advisors).<\/p>\n<p><a href=\"https:\/\/vascern.eu\/\">Vascern<\/a> (where our ERN is located in the Erasmus Medical Centre in Rotterdam, Prof. Dr. Miikka Vikkula is one of our medical advisors).<\/p>\n<p>How can VASCERN help: <a href=\"https:\/\/www.youtube.com\/watch?v=01j2CsLlqVY\">Https:\/\/www.youtube.com\/watch?v=01j2CsLlqVY<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>It can be a challenge to provide highly specialised treatment or care to patients with complex conditions. This is especially true in rare diseases. This challenge is due both to the scarcity of expertise and to the spread of small patient populations in the EU, sometimes in isolated locations where expertise does not exist or [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":2160,"parent":651,"menu_order":2,"comment_status":"closed","ping_status":"closed","template":"aw-modules\/awcf_create_page_templates_with_elementor_content\/page-templates\/page-aw-page-template-67351.php","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-659","page","type-page","status-publish","has-post-thumbnail","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>European Reference Networks (ERN&#039;s) - CMTC-OVM<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.cmtc.nl\/en\/pedia\/pedia-other\/european-reference-networks-erns\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"European Reference Networks (ERN&#039;s) - CMTC-OVM\" \/>\n<meta property=\"og:description\" content=\"It can be a challenge to provide highly specialised treatment or care to patients with complex conditions. 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