{"id":73150,"date":"2025-07-31T10:08:37","date_gmt":"2025-07-31T08:08:37","guid":{"rendered":"https:\/\/www.cmtc.nl\/members\/member-conferences\/netherlands\/leden-conferentie-2025-informatie-en-registratie\/"},"modified":"2025-10-27T11:05:45","modified_gmt":"2025-10-27T10:05:45","slug":"members-conference-2025-information-and-registration","status":"publish","type":"page","link":"https:\/\/www.cmtc.nl\/en\/members\/events\/member-conferences\/netherlands\/members-conference-2025-information-and-registration\/","title":{"rendered":"Members’ conference 2025 Information and Registration"},"content":{"rendered":"

On Friday evening, October 24, Saturday, October 25, and Sunday morning, October 26, 2025, we will host our annual global members\u2019 conference in the Netherlands.<\/strong><\/p>\r\n

Our guests can already get to know each other on Friday evening during the welcome reception with a variety of Dutch snacks, starting at 8:00 PM. The program includes interesting parallel sessions on a wide range of topics.<\/p>\r\n

This is a hybrid conference, meaning members can participate either online or on location in the Netherlands. Online participants can only attend the speaker sessions and not the other parts of the program.<\/strong><\/p>\r\n

On Saturday evening, we are organizing a dinner buffet for all participants!<\/p>\r\n

This year, we are once again organizing activities on Sunday. We will cover the cost of one hotel room per member for the night from Saturday to Sunday (including breakfast buffet).<\/p>\r\n

New: together with Nevus Network<\/h2>\r\n

This year, we will organize our members\u2019 conference together with Nevus Netwerk Nederland (NNN)<\/a>. It turns out that we often invite the same speakers and even share certain genetic similarities. In addition, we have jointly developed informational materials such as the Parent Support Guide<\/em><\/a> and Living Loss<\/em><\/a>.<\/p>\r\n

Some sessions will be held separately by each organization, such as the general members\u2019 meeting, but others\u2014like the session by Dr. Willemijn Bos\u2014will be shared. Moreover, members from both organizations are welcome to join the creative and other general sessions.<\/p>\r\n

Program<\/h2>\r\n

Friday 24th October<\/h3>\r\n

20:00 – 22:00 – Welcome with Dutch snacks and drinks (bar ISWV)<\/p>\r\n

Saturday 25th October (concept)<\/h3>\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n
Time (CET)<\/th>\r\nSpeaker(s)<\/th>\r\nSubject<\/th>\r\n<\/tr>\r\n<\/thead>\r\n
08:30 – 09:00<\/td>\r\n\u00a0<\/td>\r\nReception en registration<\/td>\r\n<\/tr>\r\n
09:00 – 09:30<\/td>\r\nLex van der Heijden<\/td>\r\nWelcome, agenda and members’ meeting<\/td>\r\n<\/tr>\r\n
09:30 – 10:30<\/td>\r\nDr. Bibi Montfrans & Dr. Jorie Versmissen (Dutch and English)<\/td>\r\nVascular malformations: teamwork<\/td>\r\n<\/tr>\r\n
10:00 – 12:00<\/td>\r\nWorkshop<\/td>\r\nSilver Stackable Ring<\/td>\r\n<\/tr>\r\n
10:30 – 11:30<\/td>\r\nDr. Willemijn Bos (English)<\/td>\r\nFour layers model of the skin<\/td>\r\n<\/tr>\r\n
11:00 – 13:00<\/td>\r\nWorkshop<\/td>\r\nUgly Christmas Sweater<\/td>\r\n<\/tr>\r\n
11:30 – 12:00<\/td>\r\n–<\/td>\r\nBreak with ‘vlaai’<\/td>\r\n<\/tr>\r\n
12:00 – 13:00<\/td>\r\nDr. Willemijn Bos (Dutch)<\/td>\r\nFour layers model of the skin<\/td>\r\n<\/tr>\r\n
13:00 – 14:00<\/td>\r\n–<\/td>\r\nLunch<\/td>\r\n<\/tr>\r\n
13:00 – 16:15<\/td>\r\nWorkshop<\/td>\r\nGraffiti<\/td>\r\n<\/tr>\r\n
14:00 – 15:00<\/td>\r\nMatt Bolz-Johnson (Eurordis, English)<\/td>\r\nMental health toolkit<\/td>\r\n<\/tr>\r\n
15:00<\/td>\r\n\u00a0<\/td>\r\nFresh ‘stroopwafels’ main entrance outside<\/td>\r\n<\/tr>\r\n
16:30 – 18:00<\/td>\r\n–<\/td>\r\n\r\n

Drinks<\/p>\r\n<\/td>\r\n<\/tr>\r\n

18:30 – 20:00<\/td>\r\n–<\/td>\r\nDinner<\/td>\r\n<\/tr>\r\n
20:00 – 21:00<\/td>\r\nElwin & Nienke Lentze<\/td>\r\nMusical performance<\/td>\r\n<\/tr>\r\n
21:00 – …<\/td>\r\n–<\/td>\r\nChatting with each other<\/td>\r\n<\/tr>\r\n<\/tbody>\r\n<\/table>\r\n

Sunday 26th October (concept)<\/h3>\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n
Time<\/th>\r\nSpeaker(s)<\/th>\r\nSubject<\/th>\r\n<\/tr>\r\n<\/thead>\r\n
08:30 – 10:00<\/td>\r\n–<\/td>\r\nBreakfast<\/td>\r\n<\/tr>\r\n
10:00 – 12:00<\/td>\r\nEcologist Alexandra<\/td>\r\nInto nature<\/td>\r\n<\/tr>\r\n
12:00 – 13:00<\/td>\r\n–<\/td>\r\nLunch<\/td>\r\n<\/tr>\r\n
\u00a0<\/td>\r\n\u00a0<\/td>\r\nTHE END<\/td>\r\n<\/tr>\r\n<\/tbody>\r\n<\/table>\r\n

Workshop – Four layers of the skin<\/h2>\r\n

Dr. Willemijn Bos will lead two workshops\u2014one in Dutch and one in English\u2014on the impact of having a skin or vascular condition. Such conditions can affect many other aspects of your life.<\/p>\r\n

The layers of the skin symbolize emotions, thoughts, and energy. Are you curious to explore the deeper meaning of the skin? Then you are welcome to join this workshop, where you will be introduced to practical insights about the significance of your skin and will have the opportunity to experience what this means for you personally.<\/p>\r\n

Note<\/strong><\/p>\r\n

Due to the costs of our conference, we kindly ask participants aged from 12 – 18\u00a0 to contribute \u20ac 10 per person and 18 and older to contribute \u20ac15 per person. This does not apply to speakers and volunteers.<\/p>\r\n

Registration<\/h2>\r\n

Closed.<\/p>\r\n

 <\/p>\r\n

Medical advice<\/h2>\r\n

In the past, it was possible to receive a free personal medical consultation during our conference. This option has been discontinued for various reasons. One important reason is our goal to further improve the quality of personal medical advice and to provide more sustainable care. Sustainable care means that, especially for patients from abroad, better healthcare can be provided in their own country, as their local physician can be well-informed by the multidisciplinary medical team in the Netherlands.<\/p>\r\n

Across Europe, many countries now have centers of expertise in the field of vascular malformations, allowing patients to consult with medical specialists in their own country and language.<\/p>\r\n

European Reference Networks (ERN’s)<\/a><\/p>\r\n

Finding an expertise center and a patient organisation regarding vascular malformations is possible via a smartphone App<\/a><\/p>\r\n

Outside of Europe, or in European countries where no centers of expertise are available, it is possible to make use of the expertise centers in the Netherlands.
Via the International Society for the Study of Vascular Anomalies (ISSVA)<\/a> it is possible to search for multidisciplinary team or medical specialist per country.<\/p>\r\n

Location Conference<\/h2>\r\n

This year, we are once again organizing our conference at the International School of Philosophy.<\/p>\r\n

Landgoed ISVW
Dodeweg 8
3832 RD Leusden
The Netherlands<\/p>\r\n

Information conference location<\/a><\/strong><\/p>\r\n

Hotelroom reservation: send an email to: reserveringen@isvw.nl\u00a0<\/a><\/strong><\/p>\r\n

At this location, comfortable hotel rooms are also available, for which we have negotiated a special rate of \u20ac110 per night per comfort room. This price includes breakfast.
These rooms are suitable for a maximum of two adults and, if needed, a child up to 2 years old (in a crib). Please note that no baby cribs are available at the hotel.<\/p>\r\n

A suite is a more spacious room where one extra bed can be added. The suite costs \u20ac188.00 per night for two people (including breakfast). An extra bed costs \u20ac25.00 per night (including breakfast). Breakfast for children between 4 and 16 years old costs \u20ac8.25 per person per day.<\/p>\r\n

Local tourist tax is not included in these prices.<\/p>\r\n

The hotel room must be reserved and paid for by the guest. No-show costs will be charged to the person who made the reservation.<\/p>\r\n