{"id":75212,"date":"2025-08-22T16:41:23","date_gmt":"2025-08-22T14:41:23","guid":{"rendered":"https:\/\/www.cmtc.nl\/youngster\/leven-met\/"},"modified":"2026-01-27T08:28:29","modified_gmt":"2026-01-27T07:28:29","slug":"living-with-young","status":"publish","type":"page","link":"https:\/\/www.cmtc.nl\/en\/youngsters\/living-with-young\/","title":{"rendered":"Living with Young"},"content":{"rendered":"<h3 data-start=\"33\" data-end=\"95\">Living with a Vascular Malformation \u2014 Your Story Matters<\/h3>\n<p data-start=\"97\" data-end=\"395\"><strong data-start=\"97\" data-end=\"123\">You and your condition<\/strong><br data-start=\"123\" data-end=\"126\" \/>A vascular malformation is often visible, but sometimes hidden. It can affect your appearance and your self-image \u2014 think of skin marks, asymmetry, or spots that make you different. It\u2019s natural to have questions about your identity and how to cope with insecurities.<\/p>\n<p data-start=\"397\" data-end=\"606\"><strong data-start=\"397\" data-end=\"428\">Home: space and recognition<\/strong><br data-start=\"428\" data-end=\"431\" \/>Don\u2019t underestimate the importance of support from those around you. Your self-image can be affected, especially if you are dealing with fatigue, treatments, or uncertainty.<\/p>\n<p data-start=\"608\" data-end=\"1034\"><strong data-start=\"608\" data-end=\"643\">School &amp; work: feeling included<\/strong><br data-start=\"643\" data-end=\"646\" \/>At school or work, you just want to be \u201cyoung,\u201d without extra attention. CMTC-OVM provides tools, like a special brochure for teachers, to promote understanding and inclusion \u2014 including tips on bullying, psychological effects, and communication.<br data-start=\"892\" data-end=\"895\" \/>Through their <strong data-start=\"909\" data-end=\"918\">Pedia<\/strong>, you can find information on psychological impact, self-confidence, patient rights, and ways to share your story.<\/p>\n<p data-start=\"1036\" data-end=\"1295\"><strong data-start=\"1036\" data-end=\"1086\">(Intimate) relationships: honesty &amp; confidence<\/strong><br data-start=\"1086\" data-end=\"1089\" \/>Questions like \u201cWhat do I tell a date?\u201d or \u201cDo I feel different?\u201d are normal. CMTC-OVM addresses these topics through blogs and videos for young adults \u2014 accessible, without medical jargon, but relatable.<\/p>\n<p data-start=\"1297\" data-end=\"1541\"><strong data-start=\"1297\" data-end=\"1326\">Travel &amp; new environments<\/strong><br data-start=\"1326\" data-end=\"1329\" \/>Want to study, work, or travel, even with your condition? It helps to know your rights, how to arrange accessibility, and what preparations you can make. CMTC-OVM creates content that addresses these questions.<\/p>\n<p data-start=\"1543\" data-end=\"1926\"><strong data-start=\"1543\" data-end=\"1582\">Explaining your condition to others<\/strong><br data-start=\"1582\" data-end=\"1585\" \/>How do you explain what a vascular malformation is without it feeling intimidating? CMTC-OVM provides informational brochures in multiple languages, videos, and a knowledge base (<strong data-start=\"1764\" data-end=\"1773\">Pedia<\/strong>) that is clear, reliable, and up-to-date.<br data-start=\"1815\" data-end=\"1818\" \/>You also gain access to a community where you can share your story \u2014 via blogs, private forums, or events.<\/p>\n<p data-start=\"1928\" data-end=\"1973\"><strong data-start=\"1928\" data-end=\"1971\">Your life, your choices \u2014 with CMTC-OVM<\/strong><\/p>\n<ul data-start=\"1974\" data-end=\"2368\" data-is-last-node=\"\" data-is-only-node=\"\">\n<li data-start=\"1974\" data-end=\"2055\">\n<p data-start=\"1976\" data-end=\"2055\">Find recognition and understanding from young people who know what it\u2019s like.<\/p>\n<\/li>\n<li data-start=\"2056\" data-end=\"2128\">\n<p data-start=\"2058\" data-end=\"2128\">Help others understand, with brochures, folders, and clear language.<\/p>\n<\/li>\n<li data-start=\"2129\" data-end=\"2210\">\n<p data-start=\"2131\" data-end=\"2210\">Boost your self-confidence \u2014 in relationships, at school, or while traveling.<\/p>\n<\/li>\n<li data-start=\"2211\" data-end=\"2281\">\n<p data-start=\"2213\" data-end=\"2281\">Use reliable information about medical, legal, and social aspects.<\/p>\n<\/li>\n<li data-start=\"2282\" data-end=\"2368\" data-is-last-node=\"\">\n<p data-start=\"2284\" data-end=\"2368\" data-is-last-node=\"\">Participate in projects and share your experiences through blogs, videos, or events.<\/p>\n<\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<p data-start=\"2026\" data-end=\"2127\">\n","protected":false},"excerpt":{"rendered":"<p>Living with a Vascular Malformation \u2014 Your Story Matters You and your conditionA vascular malformation is often visible, but sometimes hidden. It can affect your appearance and your self-image \u2014 think of skin marks, asymmetry, or spots that make you different. It\u2019s natural to have questions about your identity and how to cope with insecurities. 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