{"id":11613,"date":"2020-08-20T13:51:29","date_gmt":"2020-08-20T11:51:29","guid":{"rendered":"https:\/\/www.cmtc.nl\/zeldzame-ziekten-kenia-cmtc-ovm\/"},"modified":"2025-02-26T11:07:54","modified_gmt":"2025-02-26T10:07:54","slug":"rare-disorders-kenya-cmtc-ovm","status":"publish","type":"post","link":"https:\/\/www.cmtc.nl\/en\/blog\/2020\/08\/20\/rare-disorders-kenya-cmtc-ovm\/","title":{"rendered":"Rare disorders Kenya &#038; CMTC-OVM"},"content":{"rendered":"<p>One of our members lives in Kenya and is not only active in the Kenyan organization for rare diseases, but she is also one of our Patient Advocates. We finally met in person during the Canadian Organization for Rare Diseases International Conference in Toronto in 2019.<\/p>\n<p>It is high time to really start working together with the aim to help patients with CMTC and other blood vessel diseases and their families where possible.<\/p>\n<p><a href=\"http:\/\/rarediseasekenya.org\/\" target=\"_blank\" rel=\"noopener noreferrer\">More information<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>One of our members lives in Kenya and is not only active in the Kenyan organization for rare diseases, but she is also one of our Patient Advocates. We finally met in person during the Canadian Organization for Rare Diseases International Conference in Toronto in 2019. It is high time to really start working together [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":11610,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[297],"tags":[],"class_list":["post-11613","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-latest-news"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Rare disorders Kenya &amp; CMTC-OVM - CMTC-OVM<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.cmtc.nl\/en\/blog\/2020\/08\/20\/rare-disorders-kenya-cmtc-ovm\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Rare disorders Kenya &amp; CMTC-OVM - CMTC-OVM\" \/>\n<meta property=\"og:description\" content=\"One of our members lives in Kenya and is not only active in the Kenyan organization for rare diseases, but she is also one of our Patient Advocates. We finally met in person during the Canadian Organization for Rare Diseases International Conference in Toronto in 2019. It is high time to really start working together [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.cmtc.nl\/en\/blog\/2020\/08\/20\/rare-disorders-kenya-cmtc-ovm\/\" \/>\n<meta property=\"og:site_name\" content=\"CMTC-OVM\" \/>\n<meta property=\"article:published_time\" content=\"2020-08-20T11:51:29+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-02-26T10:07:54+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2020\/08\/rare-diseases-kenya-logo.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1001\" \/>\n\t<meta property=\"og:image:height\" content=\"1001\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Lex van der Heijden\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Lex van der Heijden\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.cmtc.nl\/en\/blog\/2020\/08\/20\/rare-disorders-kenya-cmtc-ovm\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.cmtc.nl\/en\/blog\/2020\/08\/20\/rare-disorders-kenya-cmtc-ovm\/\"},\"author\":{\"name\":\"Lex van der Heijden\",\"@id\":\"https:\/\/www.cmtc.nl\/en\/#\/schema\/person\/fae194c6ccc4c847d931396c118a0b7f\"},\"headline\":\"Rare disorders Kenya &#038; 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