{"id":11773,"date":"2020-08-31T15:36:55","date_gmt":"2020-08-31T13:36:55","guid":{"rendered":"https:\/\/www.cmtc.nl\/zeldzame-ziekten-australie-cmtc-ovm\/"},"modified":"2025-02-26T10:57:38","modified_gmt":"2025-02-26T09:57:38","slug":"rare-diseases-australia-cmtc-ovm","status":"publish","type":"post","link":"https:\/\/www.cmtc.nl\/en\/blog\/2020\/08\/31\/rare-diseases-australia-cmtc-ovm\/","title":{"rendered":"Rare diseases Australia &#038; CMTC-OVM"},"content":{"rendered":"<p>Our first contact with patients in Australia dates back to around 2005. During the Eurordis conference in 2016 in Scotland we met Prof. Dr. Gareth Baynam for the first time and met him again in Israel in 2019 during the CORD conference.<\/p>\n<p>High time to really start working together with the aim to help patients with CMTC and other blood vessel diseases and their families where possible.<\/p>\n<p><a href=\"http:\/\/www.rarevoices.org.au\/\" target=\"_blank\" rel=\"noopener noreferrer\">More information<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Our first contact with patients in Australia dates back to around 2005. During the Eurordis conference in 2016 in Scotland we met Prof. Dr. Gareth Baynam for the first time and met him again in Israel in 2019 during the CORD conference. High time to really start working together with the aim to help patients [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":11947,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[297],"tags":[],"class_list":["post-11773","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-latest-news"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.5 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Rare diseases Australia &amp; CMTC-OVM | CMTC-OVM<\/title>\n<meta name=\"description\" content=\"Our first contact with patients in Australia dates back to around 2005. During the Eurordis conference in 2016 in Scotland we met \u2014 news from CMTC-OVM\u2026\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.cmtc.nl\/en\/blog\/2020\/08\/31\/rare-diseases-australia-cmtc-ovm\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Rare diseases Australia &amp; CMTC-OVM | CMTC-OVM\" \/>\n<meta property=\"og:description\" content=\"Our first contact with patients in Australia dates back to around 2005. During the Eurordis conference in 2016 in Scotland we met \u2014 news from CMTC-OVM\u2026\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.cmtc.nl\/en\/blog\/2020\/08\/31\/rare-diseases-australia-cmtc-ovm\/\" \/>\n<meta property=\"og:site_name\" content=\"CMTC-OVM\" \/>\n<meta property=\"article:published_time\" content=\"2020-08-31T13:36:55+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-02-26T09:57:38+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2020\/09\/rarevoices_logo_lge-hr.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1090\" \/>\n\t<meta property=\"og:image:height\" content=\"961\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Lex van der Heijden\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Lex van der Heijden\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/blog\\\/2020\\\/08\\\/31\\\/rare-diseases-australia-cmtc-ovm\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/blog\\\/2020\\\/08\\\/31\\\/rare-diseases-australia-cmtc-ovm\\\/\"},\"author\":{\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/#organization\"},\"headline\":\"Rare diseases Australia &#038; CMTC-OVM\",\"datePublished\":\"2020-08-31T13:36:55+00:00\",\"dateModified\":\"2025-02-26T09:57:38+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/blog\\\/2020\\\/08\\\/31\\\/rare-diseases-australia-cmtc-ovm\\\/\"},\"wordCount\":70,\"publisher\":{\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/#organization\"},\"image\":{\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/blog\\\/2020\\\/08\\\/31\\\/rare-diseases-australia-cmtc-ovm\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/www.cmtc.nl\\\/wp-content\\\/uploads\\\/2020\\\/09\\\/rarevoices_logo_lge-hr.jpg\",\"articleSection\":[\"Latest news\"],\"inLanguage\":\"en-US\"},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/blog\\\/2020\\\/08\\\/31\\\/rare-diseases-australia-cmtc-ovm\\\/\",\"url\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/blog\\\/2020\\\/08\\\/31\\\/rare-diseases-australia-cmtc-ovm\\\/\",\"name\":\"Rare diseases Australia & CMTC-OVM | CMTC-OVM\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/blog\\\/2020\\\/08\\\/31\\\/rare-diseases-australia-cmtc-ovm\\\/#primaryimage\"},\"image\":{\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/blog\\\/2020\\\/08\\\/31\\\/rare-diseases-australia-cmtc-ovm\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/www.cmtc.nl\\\/wp-content\\\/uploads\\\/2020\\\/09\\\/rarevoices_logo_lge-hr.jpg\",\"datePublished\":\"2020-08-31T13:36:55+00:00\",\"dateModified\":\"2025-02-26T09:57:38+00:00\",\"description\":\"Our first contact with patients in Australia dates back to around 2005. During the Eurordis conference in 2016 in Scotland we met \u2014 news from CMTC-OVM\u2026\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/blog\\\/2020\\\/08\\\/31\\\/rare-diseases-australia-cmtc-ovm\\\/#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/blog\\\/2020\\\/08\\\/31\\\/rare-diseases-australia-cmtc-ovm\\\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/blog\\\/2020\\\/08\\\/31\\\/rare-diseases-australia-cmtc-ovm\\\/#primaryimage\",\"url\":\"https:\\\/\\\/www.cmtc.nl\\\/wp-content\\\/uploads\\\/2020\\\/09\\\/rarevoices_logo_lge-hr.jpg\",\"contentUrl\":\"https:\\\/\\\/www.cmtc.nl\\\/wp-content\\\/uploads\\\/2020\\\/09\\\/rarevoices_logo_lge-hr.jpg\",\"width\":1090,\"height\":961},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/blog\\\/2020\\\/08\\\/31\\\/rare-diseases-australia-cmtc-ovm\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Rare diseases Australia &#038; CMTC-OVM\",\"item\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/#website\",\"url\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/\",\"name\":\"CMTC-OVM\",\"description\":\"Global non-profit patient organisation\",\"publisher\":{\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-US\"},{\"@type\":[\"Organization\",\"NGO\"],\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/#organization\",\"name\":\"CMTC-OVM\",\"alternateName\":\"CMTC\",\"url\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/#\\\/schema\\\/logo\\\/image\\\/\",\"url\":\"https:\\\/\\\/www.cmtc.nl\\\/wp-content\\\/uploads\\\/2020\\\/03\\\/logo-cmtc.png\",\"contentUrl\":\"https:\\\/\\\/www.cmtc.nl\\\/wp-content\\\/uploads\\\/2020\\\/03\\\/logo-cmtc.png\",\"width\":208,\"height\":43,\"caption\":\"CMTC-OVM\"},\"image\":{\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/#\\\/schema\\\/logo\\\/image\\\/\"},\"foundingDate\":\"2020\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Rare diseases Australia & CMTC-OVM | CMTC-OVM","description":"Our first contact with patients in Australia dates back to around 2005. During the Eurordis conference in 2016 in Scotland we met \u2014 news from CMTC-OVM\u2026","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.cmtc.nl\/en\/blog\/2020\/08\/31\/rare-diseases-australia-cmtc-ovm\/","og_locale":"en_US","og_type":"article","og_title":"Rare diseases Australia & CMTC-OVM | CMTC-OVM","og_description":"Our first contact with patients in Australia dates back to around 2005. During the Eurordis conference in 2016 in Scotland we met \u2014 news from CMTC-OVM\u2026","og_url":"https:\/\/www.cmtc.nl\/en\/blog\/2020\/08\/31\/rare-diseases-australia-cmtc-ovm\/","og_site_name":"CMTC-OVM","article_published_time":"2020-08-31T13:36:55+00:00","article_modified_time":"2025-02-26T09:57:38+00:00","og_image":[{"width":1090,"height":961,"url":"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2020\/09\/rarevoices_logo_lge-hr.jpg","type":"image\/jpeg"}],"author":"Lex van der Heijden","twitter_card":"summary_large_image","twitter_misc":{"Written by":"Lex van der Heijden"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.cmtc.nl\/en\/blog\/2020\/08\/31\/rare-diseases-australia-cmtc-ovm\/#article","isPartOf":{"@id":"https:\/\/www.cmtc.nl\/en\/blog\/2020\/08\/31\/rare-diseases-australia-cmtc-ovm\/"},"author":{"@id":"https:\/\/www.cmtc.nl\/en\/#organization"},"headline":"Rare diseases Australia &#038; CMTC-OVM","datePublished":"2020-08-31T13:36:55+00:00","dateModified":"2025-02-26T09:57:38+00:00","mainEntityOfPage":{"@id":"https:\/\/www.cmtc.nl\/en\/blog\/2020\/08\/31\/rare-diseases-australia-cmtc-ovm\/"},"wordCount":70,"publisher":{"@id":"https:\/\/www.cmtc.nl\/en\/#organization"},"image":{"@id":"https:\/\/www.cmtc.nl\/en\/blog\/2020\/08\/31\/rare-diseases-australia-cmtc-ovm\/#primaryimage"},"thumbnailUrl":"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2020\/09\/rarevoices_logo_lge-hr.jpg","articleSection":["Latest news"],"inLanguage":"en-US"},{"@type":"WebPage","@id":"https:\/\/www.cmtc.nl\/en\/blog\/2020\/08\/31\/rare-diseases-australia-cmtc-ovm\/","url":"https:\/\/www.cmtc.nl\/en\/blog\/2020\/08\/31\/rare-diseases-australia-cmtc-ovm\/","name":"Rare diseases Australia & CMTC-OVM | CMTC-OVM","isPartOf":{"@id":"https:\/\/www.cmtc.nl\/en\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.cmtc.nl\/en\/blog\/2020\/08\/31\/rare-diseases-australia-cmtc-ovm\/#primaryimage"},"image":{"@id":"https:\/\/www.cmtc.nl\/en\/blog\/2020\/08\/31\/rare-diseases-australia-cmtc-ovm\/#primaryimage"},"thumbnailUrl":"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2020\/09\/rarevoices_logo_lge-hr.jpg","datePublished":"2020-08-31T13:36:55+00:00","dateModified":"2025-02-26T09:57:38+00:00","description":"Our first contact with patients in Australia dates back to around 2005. During the Eurordis conference in 2016 in Scotland we met \u2014 news from CMTC-OVM\u2026","breadcrumb":{"@id":"https:\/\/www.cmtc.nl\/en\/blog\/2020\/08\/31\/rare-diseases-australia-cmtc-ovm\/#breadcrumb"},"inLanguage":"en-US","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.cmtc.nl\/en\/blog\/2020\/08\/31\/rare-diseases-australia-cmtc-ovm\/"]}]},{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/www.cmtc.nl\/en\/blog\/2020\/08\/31\/rare-diseases-australia-cmtc-ovm\/#primaryimage","url":"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2020\/09\/rarevoices_logo_lge-hr.jpg","contentUrl":"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2020\/09\/rarevoices_logo_lge-hr.jpg","width":1090,"height":961},{"@type":"BreadcrumbList","@id":"https:\/\/www.cmtc.nl\/en\/blog\/2020\/08\/31\/rare-diseases-australia-cmtc-ovm\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.cmtc.nl\/en\/"},{"@type":"ListItem","position":2,"name":"Rare diseases Australia &#038; CMTC-OVM","item":"https:\/\/www.cmtc.nl\/en\/"}]},{"@type":"WebSite","@id":"https:\/\/www.cmtc.nl\/en\/#website","url":"https:\/\/www.cmtc.nl\/en\/","name":"CMTC-OVM","description":"Global non-profit patient organisation","publisher":{"@id":"https:\/\/www.cmtc.nl\/en\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.cmtc.nl\/en\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"en-US"},{"@type":["Organization","NGO"],"@id":"https:\/\/www.cmtc.nl\/en\/#organization","name":"CMTC-OVM","alternateName":"CMTC","url":"https:\/\/www.cmtc.nl\/en\/","logo":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/www.cmtc.nl\/en\/#\/schema\/logo\/image\/","url":"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2020\/03\/logo-cmtc.png","contentUrl":"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2020\/03\/logo-cmtc.png","width":208,"height":43,"caption":"CMTC-OVM"},"image":{"@id":"https:\/\/www.cmtc.nl\/en\/#\/schema\/logo\/image\/"},"foundingDate":"2020"}]}},"_links":{"self":[{"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/posts\/11773","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/comments?post=11773"}],"version-history":[{"count":2,"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/posts\/11773\/revisions"}],"predecessor-version":[{"id":65272,"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/posts\/11773\/revisions\/65272"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/media\/11947"}],"wp:attachment":[{"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/media?parent=11773"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/categories?post=11773"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/tags?post=11773"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}