{"id":14704,"date":"2021-02-11T09:23:13","date_gmt":"2021-02-11T08:23:13","guid":{"rendered":"https:\/\/www.cmtc.nl\/?p=14704"},"modified":"2025-02-24T14:33:33","modified_gmt":"2025-02-24T13:33:33","slug":"rare-diseases-day-netherlands-2021","status":"publish","type":"post","link":"https:\/\/www.cmtc.nl\/en\/blog\/2021\/02\/11\/rare-diseases-day-netherlands-2021\/","title":{"rendered":"Rare diseases day Netherlands 2021"},"content":{"rendered":"<p>We have been actively participating in the global rare diseases day for years. Unfortunately, in 2021, due to the COVID-19 virus a &#8216;real&#8217; day can&#8217;t be organised, but the rare diseases day will become a virtual day in 2021.<\/p>\n<p>Rare Disease Day takes place on\u00a0the last day of February each year.\u00a0The main objective of Rare Disease Day is to\u00a0raise awareness\u00a0amongst the general public and decision-makers about\u00a0rare diseases and their impact on patients&#8217; lives.<\/p>\n<p>Building awareness of rare diseases is so important because 1 in 20 people will live with a rare disease at some point in their life. Despite this, there is no cure for the majority of rare diseases and many go undiagnosed. Rare Disease Day improves knowledge amongst the general public of rare diseases while encouraging researchers and decision-makers to address the needs of those living with rare diseases.<\/p>\n<p>The campaign started as a European event and has progressively become a world phenomenon, with the\u00a0USA\u00a0joining in 2009 and participation in over 100\u00a0countries\u00a0all over the world in 2020. We hope even more will join in 2021.<\/p>\n<p>Do you want to share this message as much as possible so that we can reach as many people as possible? Thanks in advance on behalf of patients and their families!<\/p>\n<p><a href=\"https:\/\/www.rarediseaseday.org\/\" target=\"_blank\" rel=\"noopener\">Rare disease day website<\/a><\/p>\n<h2>Support CMTC-OVM<\/h2>\n<p>With our community we want to improve the quality of life of people who have vascular malformations. CMTC is a rare condition and therefore we think it is important that everyone who has CMTC, or other blood vessel abnormalities, can come into contact with each other. We cannot do this without the support of our donors.<\/p>\n\n\n<div class=\"wp-block-buttons is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link wp-element-button\" href=\"https:\/\/www.cmtc.nl\/en\/members\/registration\/one-time-donation\/\">Became a donor<\/a><\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-buttons is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link wp-element-button\" href=\"https:\/\/www.cmtc.nl\/en\/members\/registration\/membership-registration\/\">Become a member<\/a><\/div>\n<\/div>\n\n\n\n<p><\/p>\n","protected":false},"excerpt":{"rendered":"<p>We have been actively participating in the global rare diseases day for years. Unfortunately, in 2021, due to the COVID-19 virus a &#8216;real&#8217; day can&#8217;t be organised, but the rare diseases day will become a virtual day in 2021. Rare Disease Day takes place on\u00a0the last day of February each year.\u00a0The main objective of Rare [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":14699,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[190],"tags":[],"class_list":["post-14704","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-external-conferences-rdd-en"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Rare diseases day Netherlands 2021 - CMTC-OVM<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.cmtc.nl\/en\/blog\/2021\/02\/11\/rare-diseases-day-netherlands-2021\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Rare diseases day Netherlands 2021 - CMTC-OVM\" \/>\n<meta property=\"og:description\" content=\"We have been actively participating in the global rare diseases day for years. Unfortunately, in 2021, due to the COVID-19 virus a &#8216;real&#8217; day can&#8217;t be organised, but the rare diseases day will become a virtual day in 2021. 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