{"id":28548,"date":"2022-02-25T17:56:23","date_gmt":"2022-02-25T16:56:23","guid":{"rendered":"https:\/\/www.cmtc.nl\/blog\/2022\/02\/25\/wereldwijde-zeldzame-ziektendag-28-februari-2022\/"},"modified":"2025-02-24T14:07:35","modified_gmt":"2025-02-24T13:07:35","slug":"rare-diseases-day-netherlands-2022","status":"publish","type":"post","link":"https:\/\/www.cmtc.nl\/en\/blog\/2022\/02\/25\/rare-diseases-day-netherlands-2022\/","title":{"rendered":"Rare Diseases Day Netherlands 2022"},"content":{"rendered":"<p>Traditionally, Rare Disease Day is organized worldwide on the last day of February. We have also been doing this for years.<\/p>\n<p>We have also developed material ourselves and we also make it available to our Patient Advocates so that they can make their own version for their country.<\/p>\n<p>Former Royal Palace Soestdijk<br \/><img fetchpriority=\"high\" decoding=\"async\" class=\"alignnone wp-image-28565 size-full\" src=\"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2022\/02\/paleis.jpg\" alt=\"\" width=\"2048\" height=\"939\" srcset=\"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2022\/02\/paleis.jpg 2048w, https:\/\/www.cmtc.nl\/wp-content\/uploads\/2022\/02\/paleis-768x352.jpg 768w\" sizes=\"(max-width: 2048px) 100vw, 2048px\" \/><\/p>\n<p>Our organization is an active and sparkling organization where the sparks fly!<\/p>\n\n\n<figure class=\"wp-block-embed is-type-video is-provider-vimeo wp-block-embed-vimeo wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe title=\"CMTC-OVM Sparks RDD 2022.mp4\" src=\"https:\/\/player.vimeo.com\/video\/681941492?dnt=1&amp;app_id=122963\" width=\"800\" height=\"450\" frameborder=\"0\" allow=\"autoplay; fullscreen; picture-in-picture; clipboard-write; encrypted-media\"><\/iframe>\n<\/div><\/figure>\n\n\n\n<p>Our Eden from England bakes rare disease day eggs!<\/p>\n\n\n\n<figure class=\"wp-block-embed is-type-video is-provider-vimeo wp-block-embed-vimeo wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe title=\"Rare Disease Day eggs Eden.mp4\" src=\"https:\/\/player.vimeo.com\/video\/681940120?dnt=1&amp;app_id=122963\" width=\"800\" height=\"450\" frameborder=\"0\" allow=\"autoplay; fullscreen; picture-in-picture; clipboard-write; encrypted-media\"><\/iframe>\n<\/div><\/figure>\n\n\n\n<p>The video of our ERN VASCERN<\/p>\n\n\n\n<figure class=\"wp-block-embed is-type-video is-provider-vimeo wp-block-embed-vimeo wp-embed-aspect-4-3 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe title=\"VASCERN RDD 2022.mp4\" src=\"https:\/\/player.vimeo.com\/video\/683284077?dnt=1&amp;app_id=122963\" width=\"800\" height=\"600\" frameborder=\"0\" allow=\"autoplay; fullscreen; picture-in-picture; clipboard-write; encrypted-media\"><\/iframe>\n<\/div><\/figure>\n\n\n\n<p>The Dutch video<\/p>\n\n\n\n<figure class=\"wp-block-embed is-type-video is-provider-vimeo wp-block-embed-vimeo wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe title=\"Rare Disease Day 2022\" src=\"https:\/\/player.vimeo.com\/video\/670139922?h=1df6df4ba4&amp;dnt=1&amp;app_id=122963\" width=\"800\" height=\"450\" frameborder=\"0\" allow=\"autoplay; fullscreen; picture-in-picture; clipboard-write; encrypted-media\"><\/iframe>\n<\/div><\/figure>\n","protected":false},"excerpt":{"rendered":"<p>Traditionally, Rare Disease Day is organized worldwide on the last day of February. We have also been doing this for years. We have also developed material ourselves and we also make it available to our Patient Advocates so that they can make their own version for their country. Former Royal Palace Soestdijk Our organization is [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":28554,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[190],"tags":[],"class_list":["post-28548","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-external-conferences-rdd-en"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Rare Diseases Day Netherlands 2022 - CMTC-OVM<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.cmtc.nl\/en\/blog\/2022\/02\/25\/rare-diseases-day-netherlands-2022\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Rare Diseases Day Netherlands 2022 - CMTC-OVM\" \/>\n<meta property=\"og:description\" content=\"Traditionally, Rare Disease Day is organized worldwide on the last day of February. 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Former Royal Palace Soestdijk Our organization is [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.cmtc.nl\/en\/blog\/2022\/02\/25\/rare-diseases-day-netherlands-2022\/\" \/>\n<meta property=\"og:site_name\" content=\"CMTC-OVM\" \/>\n<meta property=\"article:published_time\" content=\"2022-02-25T16:56:23+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-02-24T13:07:35+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2022\/02\/cmtc-ovm-rdd-2022-logo.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"400\" \/>\n\t<meta property=\"og:image:height\" content=\"400\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Lex van der Heijden\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Lex van der Heijden\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minute\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.cmtc.nl\/en\/blog\/2022\/02\/25\/rare-diseases-day-netherlands-2022\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.cmtc.nl\/en\/blog\/2022\/02\/25\/rare-diseases-day-netherlands-2022\/\"},\"author\":{\"name\":\"Lex van der Heijden\",\"@id\":\"https:\/\/www.cmtc.nl\/en\/#\/schema\/person\/fae194c6ccc4c847d931396c118a0b7f\"},\"headline\":\"Rare Diseases Day Netherlands 2022\",\"datePublished\":\"2022-02-25T16:56:23+00:00\",\"dateModified\":\"2025-02-24T13:07:35+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.cmtc.nl\/en\/blog\/2022\/02\/25\/rare-diseases-day-netherlands-2022\/\"},\"wordCount\":101,\"image\":{\"@id\":\"https:\/\/www.cmtc.nl\/en\/blog\/2022\/02\/25\/rare-diseases-day-netherlands-2022\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2022\/02\/cmtc-ovm-rdd-2022-logo.jpg\",\"articleSection\":[\"External conferences RDD\"],\"inLanguage\":\"en-US\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.cmtc.nl\/en\/blog\/2022\/02\/25\/rare-diseases-day-netherlands-2022\/\",\"url\":\"https:\/\/www.cmtc.nl\/en\/blog\/2022\/02\/25\/rare-diseases-day-netherlands-2022\/\",\"name\":\"Rare Diseases Day Netherlands 2022 - 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