{"id":37806,"date":"2023-04-04T11:19:43","date_gmt":"2023-04-04T09:19:43","guid":{"rendered":"https:\/\/www.cmtc.nl\/blog\/2023\/04\/04\/blog-katie-allen-mrt-2023\/"},"modified":"2025-02-24T17:08:21","modified_gmt":"2025-02-24T16:08:21","slug":"blog-katie-allen-mar-2023","status":"publish","type":"post","link":"https:\/\/www.cmtc.nl\/en\/blog\/2023\/04\/04\/blog-katie-allen-mar-2023\/","title":{"rendered":"Blog Katie Allen Mar. 2023"},"content":{"rendered":"<p><img fetchpriority=\"high\" decoding=\"async\" class=\"size-medium wp-image-37799 alignright\" src=\"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2023\/04\/202303-march-2023-pic-1-300x225.jpg\" alt=\"\" width=\"300\" height=\"225\" srcset=\"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2023\/04\/202303-march-2023-pic-1-300x225.jpg 300w, https:\/\/www.cmtc.nl\/wp-content\/uploads\/2023\/04\/202303-march-2023-pic-1-400x300.jpg 400w, https:\/\/www.cmtc.nl\/wp-content\/uploads\/2023\/04\/202303-march-2023-pic-1.jpg 404w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/><\/p>\n<p>I had the wonderful opportunity to attend the Canadian Organisation for Rare Diseases (CORD) Rare Disease Day Conference on March 28th and 29th. I attended virtually here in British Columbia while the conference was held in Ottawa, allowing patients and patient advocates from across Canada to come together and sit down with Members of Parliament to discuss Canada\u2019s first-ever National Strategy for Drugs for Rare Diseases; a huge step forward towards equitable care for Canadians with rare diseases. It is always an honor and exciting time attending these national conferences and furthering the discussion on rare diseases.<\/p>\n<p>Would you also like to contribute? Please send an email to <a href=\"mailto:president@cmtc.nl\">president@cmtc.nl<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>I had the wonderful opportunity to attend the Canadian Organisation for Rare Diseases (CORD) Rare Disease Day Conference on March 28th and 29th. I attended virtually here in British Columbia while the conference was held in Ottawa, allowing patients and patient advocates from across Canada to come together and sit down with Members of Parliament [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":37802,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[486],"tags":[],"class_list":["post-37806","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-blog-katie-allen-en"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.5 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Blog Katie Allen Mar. 2023 - CMTC-OVM<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.cmtc.nl\/en\/blog\/2023\/04\/04\/blog-katie-allen-mar-2023\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Blog Katie Allen Mar. 2023 - CMTC-OVM\" \/>\n<meta property=\"og:description\" content=\"I had the wonderful opportunity to attend the Canadian Organisation for Rare Diseases (CORD) Rare Disease Day Conference on March 28th and 29th. I attended virtually here in British Columbia while the conference was held in Ottawa, allowing patients and patient advocates from across Canada to come together and sit down with Members of Parliament [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.cmtc.nl\/en\/blog\/2023\/04\/04\/blog-katie-allen-mar-2023\/\" \/>\n<meta property=\"og:site_name\" content=\"CMTC-OVM\" \/>\n<meta property=\"article:published_time\" content=\"2023-04-04T09:19:43+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-02-24T16:08:21+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2023\/04\/202303-march-2023-pic-2.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"615\" \/>\n\t<meta property=\"og:image:height\" content=\"461\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Lex van der Heijden\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Lex van der Heijden\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/blog\\\/2023\\\/04\\\/04\\\/blog-katie-allen-mar-2023\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/blog\\\/2023\\\/04\\\/04\\\/blog-katie-allen-mar-2023\\\/\"},\"author\":{\"name\":\"Lex van der Heijden\",\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/#\\\/schema\\\/person\\\/fae194c6ccc4c847d931396c118a0b7f\"},\"headline\":\"Blog Katie Allen Mar. 2023\",\"datePublished\":\"2023-04-04T09:19:43+00:00\",\"dateModified\":\"2025-02-24T16:08:21+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/blog\\\/2023\\\/04\\\/04\\\/blog-katie-allen-mar-2023\\\/\"},\"wordCount\":116,\"commentCount\":0,\"image\":{\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/blog\\\/2023\\\/04\\\/04\\\/blog-katie-allen-mar-2023\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/www.cmtc.nl\\\/wp-content\\\/uploads\\\/2023\\\/04\\\/202303-march-2023-pic-2.jpg\",\"articleSection\":[\"Blog Katie Allen\"],\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/blog\\\/2023\\\/04\\\/04\\\/blog-katie-allen-mar-2023\\\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/blog\\\/2023\\\/04\\\/04\\\/blog-katie-allen-mar-2023\\\/\",\"url\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/blog\\\/2023\\\/04\\\/04\\\/blog-katie-allen-mar-2023\\\/\",\"name\":\"Blog Katie Allen Mar. 2023 - CMTC-OVM\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/blog\\\/2023\\\/04\\\/04\\\/blog-katie-allen-mar-2023\\\/#primaryimage\"},\"image\":{\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/blog\\\/2023\\\/04\\\/04\\\/blog-katie-allen-mar-2023\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/www.cmtc.nl\\\/wp-content\\\/uploads\\\/2023\\\/04\\\/202303-march-2023-pic-2.jpg\",\"datePublished\":\"2023-04-04T09:19:43+00:00\",\"dateModified\":\"2025-02-24T16:08:21+00:00\",\"author\":{\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/#\\\/schema\\\/person\\\/fae194c6ccc4c847d931396c118a0b7f\"},\"breadcrumb\":{\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/blog\\\/2023\\\/04\\\/04\\\/blog-katie-allen-mar-2023\\\/#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/blog\\\/2023\\\/04\\\/04\\\/blog-katie-allen-mar-2023\\\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/blog\\\/2023\\\/04\\\/04\\\/blog-katie-allen-mar-2023\\\/#primaryimage\",\"url\":\"https:\\\/\\\/www.cmtc.nl\\\/wp-content\\\/uploads\\\/2023\\\/04\\\/202303-march-2023-pic-2.jpg\",\"contentUrl\":\"https:\\\/\\\/www.cmtc.nl\\\/wp-content\\\/uploads\\\/2023\\\/04\\\/202303-march-2023-pic-2.jpg\",\"width\":615,\"height\":461},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/blog\\\/2023\\\/04\\\/04\\\/blog-katie-allen-mar-2023\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Blog Katie Allen Mar. 2023\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/#website\",\"url\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/\",\"name\":\"CMTC-OVM\",\"description\":\"Global non-profit patient organisation\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-US\"},{\"@type\":\"Person\",\"@id\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/#\\\/schema\\\/person\\\/fae194c6ccc4c847d931396c118a0b7f\",\"name\":\"Lex van der Heijden\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/048d3445f0c653122a4ffb542f66ffe120bde7d60ba1496b6bac440d25817b8d?s=96&d=mm&r=g\",\"url\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/048d3445f0c653122a4ffb542f66ffe120bde7d60ba1496b6bac440d25817b8d?s=96&d=mm&r=g\",\"contentUrl\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/048d3445f0c653122a4ffb542f66ffe120bde7d60ba1496b6bac440d25817b8d?s=96&d=mm&r=g\",\"caption\":\"Lex van der Heijden\"},\"description\":\"Father of a daughter with CMTC. Founder and President of the CMTC-OVM organisation. Former Senior Project Manager IBM Global Services.\",\"sameAs\":[\"https:\\\/\\\/www.cmtc.nl\\\/\"],\"url\":\"https:\\\/\\\/www.cmtc.nl\\\/en\\\/blog\\\/author\\\/lex\\\/\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Blog Katie Allen Mar. 2023 - CMTC-OVM","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.cmtc.nl\/en\/blog\/2023\/04\/04\/blog-katie-allen-mar-2023\/","og_locale":"en_US","og_type":"article","og_title":"Blog Katie Allen Mar. 2023 - CMTC-OVM","og_description":"I had the wonderful opportunity to attend the Canadian Organisation for Rare Diseases (CORD) Rare Disease Day Conference on March 28th and 29th. I attended virtually here in British Columbia while the conference was held in Ottawa, allowing patients and patient advocates from across Canada to come together and sit down with Members of Parliament [&hellip;]","og_url":"https:\/\/www.cmtc.nl\/en\/blog\/2023\/04\/04\/blog-katie-allen-mar-2023\/","og_site_name":"CMTC-OVM","article_published_time":"2023-04-04T09:19:43+00:00","article_modified_time":"2025-02-24T16:08:21+00:00","og_image":[{"width":615,"height":461,"url":"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2023\/04\/202303-march-2023-pic-2.jpg","type":"image\/jpeg"}],"author":"Lex van der Heijden","twitter_card":"summary_large_image","twitter_misc":{"Written by":"Lex van der Heijden","Est. reading time":"2 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.cmtc.nl\/en\/blog\/2023\/04\/04\/blog-katie-allen-mar-2023\/#article","isPartOf":{"@id":"https:\/\/www.cmtc.nl\/en\/blog\/2023\/04\/04\/blog-katie-allen-mar-2023\/"},"author":{"name":"Lex van der Heijden","@id":"https:\/\/www.cmtc.nl\/en\/#\/schema\/person\/fae194c6ccc4c847d931396c118a0b7f"},"headline":"Blog Katie Allen Mar. 2023","datePublished":"2023-04-04T09:19:43+00:00","dateModified":"2025-02-24T16:08:21+00:00","mainEntityOfPage":{"@id":"https:\/\/www.cmtc.nl\/en\/blog\/2023\/04\/04\/blog-katie-allen-mar-2023\/"},"wordCount":116,"commentCount":0,"image":{"@id":"https:\/\/www.cmtc.nl\/en\/blog\/2023\/04\/04\/blog-katie-allen-mar-2023\/#primaryimage"},"thumbnailUrl":"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2023\/04\/202303-march-2023-pic-2.jpg","articleSection":["Blog Katie Allen"],"inLanguage":"en-US","potentialAction":[{"@type":"CommentAction","name":"Comment","target":["https:\/\/www.cmtc.nl\/en\/blog\/2023\/04\/04\/blog-katie-allen-mar-2023\/#respond"]}]},{"@type":"WebPage","@id":"https:\/\/www.cmtc.nl\/en\/blog\/2023\/04\/04\/blog-katie-allen-mar-2023\/","url":"https:\/\/www.cmtc.nl\/en\/blog\/2023\/04\/04\/blog-katie-allen-mar-2023\/","name":"Blog Katie Allen Mar. 2023 - CMTC-OVM","isPartOf":{"@id":"https:\/\/www.cmtc.nl\/en\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.cmtc.nl\/en\/blog\/2023\/04\/04\/blog-katie-allen-mar-2023\/#primaryimage"},"image":{"@id":"https:\/\/www.cmtc.nl\/en\/blog\/2023\/04\/04\/blog-katie-allen-mar-2023\/#primaryimage"},"thumbnailUrl":"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2023\/04\/202303-march-2023-pic-2.jpg","datePublished":"2023-04-04T09:19:43+00:00","dateModified":"2025-02-24T16:08:21+00:00","author":{"@id":"https:\/\/www.cmtc.nl\/en\/#\/schema\/person\/fae194c6ccc4c847d931396c118a0b7f"},"breadcrumb":{"@id":"https:\/\/www.cmtc.nl\/en\/blog\/2023\/04\/04\/blog-katie-allen-mar-2023\/#breadcrumb"},"inLanguage":"en-US","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.cmtc.nl\/en\/blog\/2023\/04\/04\/blog-katie-allen-mar-2023\/"]}]},{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/www.cmtc.nl\/en\/blog\/2023\/04\/04\/blog-katie-allen-mar-2023\/#primaryimage","url":"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2023\/04\/202303-march-2023-pic-2.jpg","contentUrl":"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2023\/04\/202303-march-2023-pic-2.jpg","width":615,"height":461},{"@type":"BreadcrumbList","@id":"https:\/\/www.cmtc.nl\/en\/blog\/2023\/04\/04\/blog-katie-allen-mar-2023\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.cmtc.nl\/en\/"},{"@type":"ListItem","position":2,"name":"Blog Katie Allen Mar. 2023"}]},{"@type":"WebSite","@id":"https:\/\/www.cmtc.nl\/en\/#website","url":"https:\/\/www.cmtc.nl\/en\/","name":"CMTC-OVM","description":"Global non-profit patient organisation","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.cmtc.nl\/en\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"en-US"},{"@type":"Person","@id":"https:\/\/www.cmtc.nl\/en\/#\/schema\/person\/fae194c6ccc4c847d931396c118a0b7f","name":"Lex van der Heijden","image":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/secure.gravatar.com\/avatar\/048d3445f0c653122a4ffb542f66ffe120bde7d60ba1496b6bac440d25817b8d?s=96&d=mm&r=g","url":"https:\/\/secure.gravatar.com\/avatar\/048d3445f0c653122a4ffb542f66ffe120bde7d60ba1496b6bac440d25817b8d?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/048d3445f0c653122a4ffb542f66ffe120bde7d60ba1496b6bac440d25817b8d?s=96&d=mm&r=g","caption":"Lex van der Heijden"},"description":"Father of a daughter with CMTC. Founder and President of the CMTC-OVM organisation. Former Senior Project Manager IBM Global Services.","sameAs":["https:\/\/www.cmtc.nl\/"],"url":"https:\/\/www.cmtc.nl\/en\/blog\/author\/lex\/"}]}},"_links":{"self":[{"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/posts\/37806","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/comments?post=37806"}],"version-history":[{"count":3,"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/posts\/37806\/revisions"}],"predecessor-version":[{"id":61217,"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/posts\/37806\/revisions\/61217"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/media\/37802"}],"wp:attachment":[{"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/media?parent=37806"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/categories?post=37806"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/tags?post=37806"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}