{"id":6217,"date":"2020-04-19T14:02:43","date_gmt":"2020-04-19T12:02:43","guid":{"rendered":"https:\/\/www.cmtc.nl\/european-patient-advocacy-groups-epags-nederland\/"},"modified":"2025-02-26T13:19:24","modified_gmt":"2025-02-26T12:19:24","slug":"european-patient-advocacy-groups-epags-netherlands","status":"publish","type":"post","link":"https:\/\/www.cmtc.nl\/en\/blog\/2020\/04\/19\/european-patient-advocacy-groups-epags-netherlands\/","title":{"rendered":"European Patient Advocacy Groups (ePAGs) Netherlands"},"content":{"rendered":"<p>On 19 March 2019 the first VSOP meeting took place with fifteen Dutch patient representatives involved in the European Patient Advocacy Groups (ePAGs), part of European Reference Networks (ERNs).<\/p>\n<p>ERNs connect the recognised centres of excellence for rare diseases of the European Member States in order to facilitate cooperation in the field of care and research.<\/p>\n<ul>\n<li><a href=\"https:\/\/webgate.ec.europa.eu\/ern\/\">European website about ERNs<\/a><\/li>\n<li><a href=\"https:\/\/www.eurordis.org\/content\/about-european-reference-networks\" target=\"_blank\" rel=\"noopener noreferrer\">Information from EURORDIS about ERNs<\/a><\/li>\n<\/ul>\n<p>The aim of this meeting was to gain insight into the opportunities and challenges experienced by Dutch patient representatives in their European activities. At the national level, there is a need for coordination, exchange of experience, and cooperation with relevant parties such as the Ministry of Health and the Dutch Federation of University Medical Centres (NFU).<\/p>\n<p>Doel van deze bijeenkomst was inzicht te krijgen in de kansen en uitdagingen die Nederlandse pati\u00ebntvertegenwoordigers ervaren bij hun Europese activiteiten. Op nationaal niveau blijkt er o.a. behoefte aan onderlinge afstemming, het uitwisselen van ervaringen en samenwerking met relevante partijen als het ministerie van VWS en Nederlandse Federatie van Universitair Medische Centra (NFU).<\/p>\n","protected":false},"excerpt":{"rendered":"<p>On 19 March 2019 the first VSOP meeting took place with fifteen Dutch patient representatives involved in the European Patient Advocacy Groups (ePAGs), part of European Reference Networks (ERNs). ERNs connect the recognised centres of excellence for rare diseases of the European Member States in order to facilitate cooperation in the field of care and [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":4479,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[297],"tags":[],"class_list":["post-6217","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-latest-news"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>European Patient Advocacy Groups (ePAGs) Netherlands - CMTC-OVM<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.cmtc.nl\/en\/blog\/2020\/04\/19\/european-patient-advocacy-groups-epags-netherlands\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"European Patient Advocacy Groups (ePAGs) Netherlands - CMTC-OVM\" \/>\n<meta property=\"og:description\" content=\"On 19 March 2019 the first VSOP meeting took place with fifteen Dutch patient representatives involved in the European Patient Advocacy Groups (ePAGs), part of European Reference Networks (ERNs). ERNs connect the recognised centres of excellence for rare diseases of the European Member States in order to facilitate cooperation in the field of care and [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.cmtc.nl\/en\/blog\/2020\/04\/19\/european-patient-advocacy-groups-epags-netherlands\/\" \/>\n<meta property=\"og:site_name\" content=\"CMTC-OVM\" \/>\n<meta property=\"article:published_time\" content=\"2020-04-19T12:02:43+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-02-26T12:19:24+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2020\/04\/epagsnl-201903-1.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"383\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Lex van der Heijden\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Lex van der Heijden\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minute\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.cmtc.nl\/en\/blog\/2020\/04\/19\/european-patient-advocacy-groups-epags-netherlands\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.cmtc.nl\/en\/blog\/2020\/04\/19\/european-patient-advocacy-groups-epags-netherlands\/\"},\"author\":{\"name\":\"Lex van der Heijden\",\"@id\":\"https:\/\/www.cmtc.nl\/en\/#\/schema\/person\/fae194c6ccc4c847d931396c118a0b7f\"},\"headline\":\"European Patient Advocacy Groups (ePAGs) Netherlands\",\"datePublished\":\"2020-04-19T12:02:43+00:00\",\"dateModified\":\"2025-02-26T12:19:24+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.cmtc.nl\/en\/blog\/2020\/04\/19\/european-patient-advocacy-groups-epags-netherlands\/\"},\"wordCount\":180,\"image\":{\"@id\":\"https:\/\/www.cmtc.nl\/en\/blog\/2020\/04\/19\/european-patient-advocacy-groups-epags-netherlands\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2020\/04\/epagsnl-201903-1.jpg\",\"articleSection\":[\"Latest news\"],\"inLanguage\":\"en-US\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.cmtc.nl\/en\/blog\/2020\/04\/19\/european-patient-advocacy-groups-epags-netherlands\/\",\"url\":\"https:\/\/www.cmtc.nl\/en\/blog\/2020\/04\/19\/european-patient-advocacy-groups-epags-netherlands\/\",\"name\":\"European Patient Advocacy Groups (ePAGs) Netherlands - 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