{"id":6299,"date":"2020-04-19T15:58:58","date_gmt":"2020-04-19T13:58:58","guid":{"rendered":"https:\/\/www.cmtc.nl\/panel-deelname\/"},"modified":"2025-02-26T11:56:13","modified_gmt":"2025-02-26T10:56:13","slug":"panel-participation","status":"publish","type":"post","link":"https:\/\/www.cmtc.nl\/en\/blog\/2020\/04\/19\/panel-participation\/","title":{"rendered":"Panel participation"},"content":{"rendered":"<p>The 3rd edition of the European Reference Network-(ERN) Skin live training was held in Ghent, Belgium on the 16th of December 2019. The course, accredited by the UEMS (European CME credits) focused on: mendelian connective tissue disorders, cutaneous diseases related to DNA repair disorders, hidradenitis suppurativa, cutaneous mosaic disorders, naevi and nevoid skin disorders, complex vascular malformations. The ePAG Skin addressed patient needs and the importance of patient-centred care.<\/p>\n<p>Together with three other panel members from different countries, we explained and discussed the topic &#8216;patient burdens in rare skin disorders &#8211; what do physicians need to know?&#8217;.<\/p>\n<p>\u2018Nothing about us without us!\u2019<\/p>\n<p>Collaboration between doctors and patients (organisations) is crucial! Who is actually the real expert?<\/p>\n","protected":false},"excerpt":{"rendered":"<p>The 3rd edition of the European Reference Network-(ERN) Skin live training was held in Ghent, Belgium on the 16th of December 2019. The course, accredited by the UEMS (European CME credits) focused on: mendelian connective tissue disorders, cutaneous diseases related to DNA repair disorders, hidradenitis suppurativa, cutaneous mosaic disorders, naevi and nevoid skin disorders, complex [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":2284,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[297],"tags":[],"class_list":["post-6299","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-latest-news"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Panel participation - CMTC-OVM<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.cmtc.nl\/en\/blog\/2020\/04\/19\/panel-participation\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Panel participation - CMTC-OVM\" \/>\n<meta property=\"og:description\" content=\"The 3rd edition of the European Reference Network-(ERN) Skin live training was held in Ghent, Belgium on the 16th of December 2019. The course, accredited by the UEMS (European CME credits) focused on: mendelian connective tissue disorders, cutaneous diseases related to DNA repair disorders, hidradenitis suppurativa, cutaneous mosaic disorders, naevi and nevoid skin disorders, complex [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.cmtc.nl\/en\/blog\/2020\/04\/19\/panel-participation\/\" \/>\n<meta property=\"og:site_name\" content=\"CMTC-OVM\" \/>\n<meta property=\"article:published_time\" content=\"2020-04-19T13:58:58+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-02-26T10:56:13+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2020\/04\/ern-gent-2019.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"2560\" \/>\n\t<meta property=\"og:image:height\" content=\"1920\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Lex van der Heijden\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Lex van der Heijden\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minute\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.cmtc.nl\/en\/blog\/2020\/04\/19\/panel-participation\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.cmtc.nl\/en\/blog\/2020\/04\/19\/panel-participation\/\"},\"author\":{\"name\":\"Lex van der Heijden\",\"@id\":\"https:\/\/www.cmtc.nl\/en\/#\/schema\/person\/fae194c6ccc4c847d931396c118a0b7f\"},\"headline\":\"Panel participation\",\"datePublished\":\"2020-04-19T13:58:58+00:00\",\"dateModified\":\"2025-02-26T10:56:13+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.cmtc.nl\/en\/blog\/2020\/04\/19\/panel-participation\/\"},\"wordCount\":118,\"image\":{\"@id\":\"https:\/\/www.cmtc.nl\/en\/blog\/2020\/04\/19\/panel-participation\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2020\/04\/ern-gent-2019.jpg\",\"articleSection\":[\"Latest news\"],\"inLanguage\":\"en-US\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.cmtc.nl\/en\/blog\/2020\/04\/19\/panel-participation\/\",\"url\":\"https:\/\/www.cmtc.nl\/en\/blog\/2020\/04\/19\/panel-participation\/\",\"name\":\"Panel participation - 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