{"id":70632,"date":"2025-03-21T08:24:11","date_gmt":"2025-03-21T07:24:11","guid":{"rendered":"https:\/\/www.cmtc.nl\/?p=70632"},"modified":"2025-05-14T11:51:09","modified_gmt":"2025-05-14T09:51:09","slug":"vac-2025-berlin","status":"publish","type":"post","link":"https:\/\/www.cmtc.nl\/en\/blog\/2025\/03\/21\/vac-2025-berlin\/","title":{"rendered":"VAC 2025 – Berlin"},"content":{"rendered":"

In 2023, the \u2018international conference on Vascular Anomalies\u2019 (VAC) was organized. In 2025, this conference was organized again and this year in Berlin from February 11 to 14. Around 170 physicians, professors, researchers and various patient organizations participated.<\/p>\r\n

The aim of the conference is to share the latest developments in research (basic, translational and clinical) to accelerate the development of new treatment strategies for vascular malformations.<\/p>\r\n

\"\"As patient organizations, we have become acquainted with 2 pharmaceutical companies.
One company has developed a new medication for people with mutations of the PIK3CA gene with fewer side effects than sirolimus and alpelisib. This medication is currently in a \u2018clinical trial\u2019 (testing with people) in the USA.
The other company has been able to replace the medication that normally has to be taken as a pill (orally) with a gel that is applied to the vascular malformation.<\/p>\r\n

The conference was kicked off with a presentation by Petra Bogards, Patient Advocate and co-chair of our VASCA working group in\u00a0VASCERN (European Reference Network Vasculaire Malformaties).
VAC 2025 Patient Role and Engagement<\/a><\/p>\r\n

\"\"Every day patient testimonies were shown by video which made a great impression on those present. We showed a shortened video of an interview with Tessa Schiethart.
Full interview<\/a><\/p>\r\n

Ana Angulo-Urarte gaf een presentatie \u2018exploring the role of PIK3CA variants in vascular malformations\u2019 \u2013 a combined molecular and experimental modeling strategy.<\/p>\r\n

Emmanuel Seront \u2018new promising ways for sirolimus treatment \u2013 from continuous to intermittent administration of sirolimus in slow-flow vascular malformations.<\/p>\r\n

Maroeska te Loo \u2018venous malformations and identifying the patient at risk for thrombosis \u2013 what do we have.<\/p>\r\n

Emmanuel Seront \u2018improving targeted therapies in complex lymphatic anomaly \u2013 two cases of synergistic efficacy of traumetinib and sirolimus.<\/p>\r\n

Whitney Eng \u2013 real-world experience using alpelisib in 26 vascular anomaly patients treated at a single institution<\/p>\r\n

Julien Coulie \u2013 Somatic KRAS variants in limb overgrowth with capillary malformation and fast-flow, with or without slow-flow lesions \u2013 a distinct entity named KROS.<\/p>\r\n

Laurence Boon \u2013 clinical use of medicines in fast-flow vascular malformations.<\/p>\r\n

We also had a stand here again.<\/p>\r\n\r\n

 <\/p>\r\n","protected":false},"excerpt":{"rendered":"

In 2023, the \u2018international conference on Vascular Anomalies\u2019 (VAC) was organized. In 2025, this conference was organized again and this year in Berlin from February 11 to 14. Around 170 physicians, professors, researchers and various patient organizations participated. The aim of the conference is to share the latest developments in research (basic, translational and clinical) […]<\/p>\n","protected":false},"author":2,"featured_media":68617,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[188],"tags":[],"class_list":["post-70632","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-external-conferences-other-en"],"acf":[],"yoast_head":"\nVAC 2025 - Berlin - CMTC-OVM<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.cmtc.nl\/en\/blog\/2025\/03\/21\/vac-2025-berlin\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"VAC 2025 - Berlin - CMTC-OVM\" \/>\n<meta property=\"og:description\" content=\"In 2023, the \u2018international conference on Vascular Anomalies\u2019 (VAC) was organized. 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