{"id":73592,"date":"2025-09-22T15:23:47","date_gmt":"2025-09-22T13:23:47","guid":{"rendered":"https:\/\/www.cmtc.nl\/blog\/2025\/09\/22\/nieuw-europees-project-narrative\/"},"modified":"2025-09-22T15:27:35","modified_gmt":"2025-09-22T13:27:35","slug":"new-european-project-narrative","status":"publish","type":"post","link":"https:\/\/www.cmtc.nl\/en\/blog\/2025\/09\/22\/new-european-project-narrative\/","title":{"rendered":"New European project NARRATIVE"},"content":{"rendered":"

European Research Project NARRATIVE Launched<\/strong><\/p>\n

The new project NARRATIVE of the VASCA Working Group (of which CMTC-OVM is a member) within the European Reference Network VASCERN aims to gain more knowledge about the course and treatment of rare vascular anomalies.
\nVascular anomalies are rare and sometimes complex and difficult to treat. NARRATIVE is establishing a European registry to collect data on disease progression, quality of life, and genetic backgrounds.<\/p>\n

The goal: better therapies, more targeted diagnostics, and improved quality of life.<\/p>\n

Who can participate?<\/strong>
\nAnyone with a vascular malformation (blood vessel disorder such as CMTC, DCMO, or Klippel-Trenaunay). All ages \u2013 including children \u2013 are invited to participate.<\/p>\n

The study will start in Germany, initially in Freiburg. If you are being treated there, your experiences and data can help move this research an important step forward.<\/p>\n

By participating, you support:<\/p>\n

1.\u00a0\u00a0\u00a0 A better understanding of these rare diseases.<\/p>\n

2.\u00a0\u00a0\u00a0 The development of personalized treatments.<\/p>\n

3.\u00a0\u00a0\u00a0 New therapies for future generations.<\/p>\n

More information<\/strong><\/a><\/p>\n

 <\/p>\n

Interested?<\/strong><\/p>\n

Contact our organisation<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

European Research Project NARRATIVE Launched The new project NARRATIVE of the VASCA Working Group (of which CMTC-OVM is a member) within the European Reference Network VASCERN aims to gain more knowledge about the course and treatment of rare vascular anomalies. Vascular anomalies are rare and sometimes complex and difficult to treat. NARRATIVE is establishing a […]<\/p>\n","protected":false},"author":2,"featured_media":11144,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[297],"tags":[],"class_list":["post-73592","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-latest-news"],"acf":[],"yoast_head":"\nNew European project NARRATIVE - CMTC-OVM<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.cmtc.nl\/en\/blog\/2025\/09\/22\/new-european-project-narrative\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"New European project NARRATIVE - CMTC-OVM\" \/>\n<meta property=\"og:description\" content=\"European Research Project NARRATIVE Launched The new project NARRATIVE of the VASCA Working Group (of which CMTC-OVM is a member) within the European Reference Network VASCERN aims to gain more knowledge about the course and treatment of rare vascular anomalies. Vascular anomalies are rare and sometimes complex and difficult to treat. NARRATIVE is establishing a […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.cmtc.nl\/en\/blog\/2025\/09\/22\/new-european-project-narrative\/\" \/>\n<meta property=\"og:site_name\" content=\"CMTC-OVM\" \/>\n<meta property=\"article:published_time\" content=\"2025-09-22T13:23:47+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-09-22T13:27:35+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2020\/07\/vascern-logo.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"140\" \/>\n\t<meta property=\"og:image:height\" content=\"131\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Lex van der Heijden\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Lex van der Heijden\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.cmtc.nl\/en\/blog\/2025\/09\/22\/new-european-project-narrative\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.cmtc.nl\/en\/blog\/2025\/09\/22\/new-european-project-narrative\/\"},\"author\":{\"name\":\"Lex van der Heijden\",\"@id\":\"https:\/\/www.cmtc.nl\/en\/#\/schema\/person\/fae194c6ccc4c847d931396c118a0b7f\"},\"headline\":\"New European project NARRATIVE\",\"datePublished\":\"2025-09-22T13:23:47+00:00\",\"dateModified\":\"2025-09-22T13:27:35+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.cmtc.nl\/en\/blog\/2025\/09\/22\/new-european-project-narrative\/\"},\"wordCount\":166,\"image\":{\"@id\":\"https:\/\/www.cmtc.nl\/en\/blog\/2025\/09\/22\/new-european-project-narrative\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2020\/07\/vascern-logo.jpg\",\"articleSection\":[\"Latest news\"],\"inLanguage\":\"en-US\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.cmtc.nl\/en\/blog\/2025\/09\/22\/new-european-project-narrative\/\",\"url\":\"https:\/\/www.cmtc.nl\/en\/blog\/2025\/09\/22\/new-european-project-narrative\/\",\"name\":\"New European project NARRATIVE - CMTC-OVM\",\"isPartOf\":{\"@id\":\"https:\/\/www.cmtc.nl\/en\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.cmtc.nl\/en\/blog\/2025\/09\/22\/new-european-project-narrative\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.cmtc.nl\/en\/blog\/2025\/09\/22\/new-european-project-narrative\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2020\/07\/vascern-logo.jpg\",\"datePublished\":\"2025-09-22T13:23:47+00:00\",\"dateModified\":\"2025-09-22T13:27:35+00:00\",\"author\":{\"@id\":\"https:\/\/www.cmtc.nl\/en\/#\/schema\/person\/fae194c6ccc4c847d931396c118a0b7f\"},\"breadcrumb\":{\"@id\":\"https:\/\/www.cmtc.nl\/en\/blog\/2025\/09\/22\/new-european-project-narrative\/#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.cmtc.nl\/en\/blog\/2025\/09\/22\/new-european-project-narrative\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\/\/www.cmtc.nl\/en\/blog\/2025\/09\/22\/new-european-project-narrative\/#primaryimage\",\"url\":\"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2020\/07\/vascern-logo.jpg\",\"contentUrl\":\"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2020\/07\/vascern-logo.jpg\",\"width\":140,\"height\":131,\"caption\":\"VASCERN logo\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.cmtc.nl\/en\/blog\/2025\/09\/22\/new-european-project-narrative\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.cmtc.nl\/en\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"New European project NARRATIVE\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.cmtc.nl\/en\/#website\",\"url\":\"https:\/\/www.cmtc.nl\/en\/\",\"name\":\"CMTC-OVM\",\"description\":\"Global non-profit patient organisation\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.cmtc.nl\/en\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-US\"},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.cmtc.nl\/en\/#\/schema\/person\/fae194c6ccc4c847d931396c118a0b7f\",\"name\":\"Lex van der Heijden\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\/\/secure.gravatar.com\/avatar\/048d3445f0c653122a4ffb542f66ffe120bde7d60ba1496b6bac440d25817b8d?s=96&d=mm&r=g\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/048d3445f0c653122a4ffb542f66ffe120bde7d60ba1496b6bac440d25817b8d?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/048d3445f0c653122a4ffb542f66ffe120bde7d60ba1496b6bac440d25817b8d?s=96&d=mm&r=g\",\"caption\":\"Lex van der Heijden\"},\"description\":\"Father of a daughter with CMTC. Founder and President of the CMTC-OVM organisation. Former Senior Project Manager IBM Global Services.\",\"sameAs\":[\"https:\/\/www.cmtc.nl\/\"],\"url\":\"https:\/\/www.cmtc.nl\/en\/blog\/author\/lex\/\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"New European project NARRATIVE - CMTC-OVM","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.cmtc.nl\/en\/blog\/2025\/09\/22\/new-european-project-narrative\/","og_locale":"en_US","og_type":"article","og_title":"New European project NARRATIVE - CMTC-OVM","og_description":"European Research Project NARRATIVE Launched The new project NARRATIVE of the VASCA Working Group (of which CMTC-OVM is a member) within the European Reference Network VASCERN aims to gain more knowledge about the course and treatment of rare vascular anomalies. Vascular anomalies are rare and sometimes complex and difficult to treat. NARRATIVE is establishing a […]","og_url":"https:\/\/www.cmtc.nl\/en\/blog\/2025\/09\/22\/new-european-project-narrative\/","og_site_name":"CMTC-OVM","article_published_time":"2025-09-22T13:23:47+00:00","article_modified_time":"2025-09-22T13:27:35+00:00","og_image":[{"width":140,"height":131,"url":"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2020\/07\/vascern-logo.jpg","type":"image\/jpeg"}],"author":"Lex van der Heijden","twitter_card":"summary_large_image","twitter_misc":{"Written by":"Lex van der Heijden","Est. reading time":"2 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.cmtc.nl\/en\/blog\/2025\/09\/22\/new-european-project-narrative\/#article","isPartOf":{"@id":"https:\/\/www.cmtc.nl\/en\/blog\/2025\/09\/22\/new-european-project-narrative\/"},"author":{"name":"Lex van der Heijden","@id":"https:\/\/www.cmtc.nl\/en\/#\/schema\/person\/fae194c6ccc4c847d931396c118a0b7f"},"headline":"New European project NARRATIVE","datePublished":"2025-09-22T13:23:47+00:00","dateModified":"2025-09-22T13:27:35+00:00","mainEntityOfPage":{"@id":"https:\/\/www.cmtc.nl\/en\/blog\/2025\/09\/22\/new-european-project-narrative\/"},"wordCount":166,"image":{"@id":"https:\/\/www.cmtc.nl\/en\/blog\/2025\/09\/22\/new-european-project-narrative\/#primaryimage"},"thumbnailUrl":"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2020\/07\/vascern-logo.jpg","articleSection":["Latest news"],"inLanguage":"en-US"},{"@type":"WebPage","@id":"https:\/\/www.cmtc.nl\/en\/blog\/2025\/09\/22\/new-european-project-narrative\/","url":"https:\/\/www.cmtc.nl\/en\/blog\/2025\/09\/22\/new-european-project-narrative\/","name":"New European project NARRATIVE - CMTC-OVM","isPartOf":{"@id":"https:\/\/www.cmtc.nl\/en\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.cmtc.nl\/en\/blog\/2025\/09\/22\/new-european-project-narrative\/#primaryimage"},"image":{"@id":"https:\/\/www.cmtc.nl\/en\/blog\/2025\/09\/22\/new-european-project-narrative\/#primaryimage"},"thumbnailUrl":"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2020\/07\/vascern-logo.jpg","datePublished":"2025-09-22T13:23:47+00:00","dateModified":"2025-09-22T13:27:35+00:00","author":{"@id":"https:\/\/www.cmtc.nl\/en\/#\/schema\/person\/fae194c6ccc4c847d931396c118a0b7f"},"breadcrumb":{"@id":"https:\/\/www.cmtc.nl\/en\/blog\/2025\/09\/22\/new-european-project-narrative\/#breadcrumb"},"inLanguage":"en-US","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.cmtc.nl\/en\/blog\/2025\/09\/22\/new-european-project-narrative\/"]}]},{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/www.cmtc.nl\/en\/blog\/2025\/09\/22\/new-european-project-narrative\/#primaryimage","url":"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2020\/07\/vascern-logo.jpg","contentUrl":"https:\/\/www.cmtc.nl\/wp-content\/uploads\/2020\/07\/vascern-logo.jpg","width":140,"height":131,"caption":"VASCERN logo"},{"@type":"BreadcrumbList","@id":"https:\/\/www.cmtc.nl\/en\/blog\/2025\/09\/22\/new-european-project-narrative\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.cmtc.nl\/en\/"},{"@type":"ListItem","position":2,"name":"New European project NARRATIVE"}]},{"@type":"WebSite","@id":"https:\/\/www.cmtc.nl\/en\/#website","url":"https:\/\/www.cmtc.nl\/en\/","name":"CMTC-OVM","description":"Global non-profit patient organisation","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.cmtc.nl\/en\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"en-US"},{"@type":"Person","@id":"https:\/\/www.cmtc.nl\/en\/#\/schema\/person\/fae194c6ccc4c847d931396c118a0b7f","name":"Lex van der Heijden","image":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/secure.gravatar.com\/avatar\/048d3445f0c653122a4ffb542f66ffe120bde7d60ba1496b6bac440d25817b8d?s=96&d=mm&r=g","url":"https:\/\/secure.gravatar.com\/avatar\/048d3445f0c653122a4ffb542f66ffe120bde7d60ba1496b6bac440d25817b8d?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/048d3445f0c653122a4ffb542f66ffe120bde7d60ba1496b6bac440d25817b8d?s=96&d=mm&r=g","caption":"Lex van der Heijden"},"description":"Father of a daughter with CMTC. Founder and President of the CMTC-OVM organisation. Former Senior Project Manager IBM Global Services.","sameAs":["https:\/\/www.cmtc.nl\/"],"url":"https:\/\/www.cmtc.nl\/en\/blog\/author\/lex\/"}]}},"_links":{"self":[{"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/posts\/73592","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/comments?post=73592"}],"version-history":[{"count":2,"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/posts\/73592\/revisions"}],"predecessor-version":[{"id":73594,"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/posts\/73592\/revisions\/73594"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/media\/11144"}],"wp:attachment":[{"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/media?parent=73592"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/categories?post=73592"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.cmtc.nl\/en\/wp-json\/wp\/v2\/tags?post=73592"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}