{"id":77199,"date":"2026-07-14T15:34:52","date_gmt":"2026-07-14T13:34:52","guid":{"rendered":"https:\/\/www.cmtc.nl\/blog\/2026\/07\/14\/zeldzame-ziekten-barometer\/"},"modified":"2026-07-14T15:38:58","modified_gmt":"2026-07-14T13:38:58","slug":"rare-disease-barometer","status":"publish","type":"post","link":"https:\/\/www.cmtc.nl\/en\/blog\/2026\/07\/14\/rare-disease-barometer\/","title":{"rendered":"Rare disease barometer"},"content":{"rendered":"

Improve Our Mental Health! June 2026<\/p>\n

30 million people live with a rare disease in Europe. Alongside their families, they face physical and practical challenges but also a significant psychological burden. Recognising the rare disease community as a vulnerable population in mental health strategies is essential to deliver the care they need.<\/p>\n

This Rare Barometer survey, conducted between September and December 2025 and gathering the answers from nearly 9,900 participants in Europe, looked into the mental health of people living with a rare disease and their family members, assessing self-reported symptoms of depression, anxiety, loneliness and suicidal ideation.<\/p>\n

It highlighted the high levels of emotional distress experienced by the rare disease community, underlining the urgent need to better integrate mental health into rare disease care and policy.<\/p>\n

Full report in multiple languages<\/strong><\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Improve Our Mental Health! June 2026 30 million people live with a rare disease in Europe. Alongside their families, they face physical and practical challenges but also a significant psychological burden. Recognising the rare disease community as a vulnerable population in mental health strategies is essential to deliver the care they need. This Rare Barometer […]<\/p>\n","protected":false},"author":2,"featured_media":73718,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[297],"tags":[],"class_list":["post-77199","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-latest-news"],"acf":[],"yoast_head":"\nRare disease barometer | CMTC-OVM<\/title>\n<meta name=\"description\" content=\"Voor de tweede keer werd het World Congress on Rare Skin Diseases georganiseerd in Parijs van 12 t\/m 14 juni. 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