Are you between 15 and 25 years old and want to discover what CMTC-OVM (CMTC – or other vascular malformations) can mean for you? Are you looking for recognition, support, or do you want to actively contribute to rare conditions? Then CMTC-OVM is your place to be seen and heard!
Tailored content for your life stage
Growing up with a condition changes not just your body—but also your mind, social life, and future. That’s why we offer specially tailored content that answers questions like: How do I tell my friends or classmates? What study or career choices can I make with my condition? This information is relatable, reliable, and truly relevant for your stage of life.
Events & peer meetings
Several times a year, we organize gatherings such as Family Days (Efteling) and Member Conferences, exclusively for members and volunteers. Here you meet others who share similar experiences—valuable for recognition, emotional support, practical tips, and empowerment.
Check here for scheduled activities, see Agenda (scroll down).
Access to projects & media
Get involved in exciting projects, such as creating multilingual video interviews with young people, families, and healthcare professionals during events. This way, you share stories and help others understand what you experience.
Up-to-date information through various channels
Follow our newsletters, read brochures in your language, watch social media updates, interviews, and other materials—all accessible and practical.
International involvement & participation
CMTC-OVM is a global organization (active since 1997) run by passionate volunteers. We work through local representatives in different countries (“patient advocates”) and participate in international conferences and medical projects. This way, you can contribute to—or stay informed about—developments worldwide.
You find your voice and recognition in content that truly fits your age and situation.
You get the chance to meet other young people, share experiences, and realize you’re not alone.
You contribute to innovative projects that really make a difference.
You stay updated on new research, events, and stories via newsletters and social media.
By contributing and sharing your ideas, you help CMTC-OVM improve—and make a real impact.
Overviews and reports of: