For patients and families with CMTC and Other Vascular (bloodvessel) Malformations

CMTC-OVM is a worldwide non-profit patient organization that aims to improve the quality of life of people suffering from vascular abnormalities (blood vessel abnormalities), such as CMTC (‘Van Lohuizen syndrome’), and stimulate scientific research into these disorders.

Upcoming events

June 2021
August 2021
October 2021
July 2022
No event found!

12 years ago (2006) our son was born. Very quickly.

12 YEARS AGO OUR SON WAS BORN

Your support is powerful

Our worldwide non-profit organization, active since 1997, consists entirely of motivated volunteers. We can always use support in many areas. Options are for instance as sponsor (by means of eg. products, services and money) but also as volunteer, member and donor.

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REGISTER AS MEMBER

Membership of our organization offers a lot! Think for example of full access to our website, our international Family Days and Conferences in the Netherlands! Contact with other patients, families and health care providers is crucial!

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CONTRIBUTE WITH A DONATION

Do you want to make a concrete contribution to improving the quality of life for people with a rare disease?

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SPONSOR OUR ACTIVITIES

Becoming a sponsor of our organization also increases the (global) visibility of your company and shows your social face. Becoming a sponsor is a concrete interpretation of Corporate Social Responsibility / Involvement. We have sponsors from different companies who make an important contribution in various ways.

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BECOME VOLUNTEER

Voluntary work in our organization contributes to your personal development. We often offer challenging work in an international and dynamic environment. As a volunteer, you can get a good expense allowance. We have drawn up volunteer profiles for practically all roles.

Twitter

On Saturday 26 June we will organize another public webinar and we have already planned our next webinar:
https://www.cmtc.nl/.../overview-registration-webinars/

#laser #vascular @NORD @EURORDIS @CORD @RDI @VASCERN @ECHAlliance @iadpo

''Eden has unfortunately been subject to many nasty comments from trolls online about the way she looks. I will continue to be her voice by standing up for Eden and everyone with a visible difference.''

https://www.changingfaces.org.uk/story/chelseas-story-stand-for-eden-and-visible-difference/

#Vascular malformation are #RareDisease causing chronic pain & disabilities. They develop w/ the growth of child. Effective treatments are lacking. @Vikkula lab gives new insights in the genetic causes of these #disease, esp. re. the role of PIK3CA gene.
https://rdcu.be/cmkNE

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