• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

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Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

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Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!


Register as member


Upcoming Events


06-07-2019 0909:0707 - 1111:0707


0808:1111 01-11-2019 - 1010:1111 02-11-2019


CMTC-OVM The Dutch global CMTC-OVM genetic research program needs still a number of biopsies (small tissues samples) in orde… https://t.co/EahZmuMiUQ
Wednesday, 19 June 2019 09:12
CMTC-OVM @Magda_Skipper @NIHDirector Clear statement Francis!
Monday, 17 June 2019 16:32
CMTC-OVM We have developed brochures in multiple languages (eg. the CMTC brochure in 16 languages). The entire set will be a… https://t.co/9Wa6ABPxPc
Saturday, 15 June 2019 10:21