For patients with CMTC and Other Vascular Malformations

CMTC-OVM is a worldwide non-profit patient organization that aims to improve the quality of life of people suffering from vascular abnormalities (blood vessel abnormalities), such as CMTC, their families, and stimulate scientific research into these disorders.
LATEST NEWS AND ACTIVITIES

29-11-2023

South Africa – Erika & Leon Whitlock

24-11-2023

Blog Katie Allen November 2023

22-11-2023

Events 2024

15-11-2023

EADV 2023 – Berlin

supporting videos

PROF. DR. JAN PETER BALKENENDE

Former Prime Minister, External Senior Advisor to EY, Professor Erasmus University, Ass. Partner Hague Corporate Affairs.

DR. YANN LE CAM

CEO Eurordis

personal stories

“As if she already understands that it is part of her.”

SANNE

“I have never seen myself as different from other children”

EDEN QUINE-TAYLOR

“Enjoy what she can do and try not to worry”

MARCIA BRANDS

Your support is powerful
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REGISTER AS MEMBER

Membership of our organization offers a lot! Think for example of full access to our website, our international Family Days and Conferences in the Netherlands! Contact with other patients, families and health care providers is crucial!

CONTRIBUTE WITH A DONATION

Do you want to make a concrete contribution to improving the quality of life for people with a rare disease?

SPONSOR OUR ACTIVITIES

Becoming a sponsor of our organization also increases the (global) visibility of your company and shows your social face. Becoming a sponsor is a concrete interpretation of Corporate Social Responsibility / Involvement. We have sponsors from different companies who make an important contribution in various ways.

BECOME VOLUNTEER

Voluntary work in our organization contributes to your personal development. We often offer challenging work in an international and dynamic environment. As a volunteer, you can get a good expense allowance. We have drawn up volunteer profiles for practically all roles.

UPCOMING EVENTS

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Twitter feed

Patient advocate Monday! Do YOU want to be a patient advocate?
If, as a member of the worldwide Dutch CMTC-OVM organization, you live in a country where there is no patient advocate yet and you would like to take on this role, please contact us!

The Rare Disease Day 2024 poster is here! 🥳

Join us in the lead up to 29 February by sharing on social media, hanging it up on your wall, or just showing your friends!

#RareDiseaseDay

We are participating in the international Patient Centricity and Engagement conference in the Netherlands. Lex van der Heijden is one of the speakers.
@ERN-Skin @vascern @eurordis

our community

Membership in our organization offers a lot! Think for example of full access to our website, our international Family Days and Conferences in the Netherlands! Contact with fellow sufferers is crucial! Membership in our organization can be reimbursed by your health insurer.

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