For patients and families with CMTC and Other Vascular (bloodvessel) Malformations

CMTC-OVM is a worldwide non-profit patient organization that aims to improve the quality of life of people suffering from vascular abnormalities (blood vessel abnormalities), such as CMTC (‘Van Lohuizen syndrome’), and stimulate scientific research into these disorders.

Upcoming events

January 2022
February 2022
March 2022
April 2022
July 2022
October 2022
No event found!

12 years ago (2006) our son was born. Very quickly.

12 YEARS AGO OUR SON WAS BORN

Your support is powerful

Our worldwide non-profit organization, active since 1997, consists entirely of motivated volunteers. We can always use support in many areas. Options are for instance as sponsor (by means of eg. products, services and money) but also as volunteer, member and donor.

registreer-als-lid

REGISTER AS MEMBER

Membership of our organization offers a lot! Think for example of full access to our website, our international Family Days and Conferences in the Netherlands! Contact with other patients, families and health care providers is crucial!

doneer

CONTRIBUTE WITH A DONATION

Do you want to make a concrete contribution to improving the quality of life for people with a rare disease?

sponsor

SPONSOR OUR ACTIVITIES

Becoming a sponsor of our organization also increases the (global) visibility of your company and shows your social face. Becoming a sponsor is a concrete interpretation of Corporate Social Responsibility / Involvement. We have sponsors from different companies who make an important contribution in various ways.

vrijwilleger

BECOME VOLUNTEER

Voluntary work in our organization contributes to your personal development. We often offer challenging work in an international and dynamic environment. As a volunteer, you can get a good expense allowance. We have drawn up volunteer profiles for practically all roles.

Twitter

A new year and a whole series of new webinars!
Saturday 22 January is our first webinar of this year.
We hope to see you (again) during our webinars!
More info:
https://bit.ly/3FErxPg
@RareDiseases @eurordis @Share4Rare @raredisorders @ECHAlliance

More smiling faces this afternoon at our second new #HCP member welcome meeting!😊They will participate in their first #RareDisease WG meetings this month and we will share more about these #healthcare professionals soon! Happy to have you all on board! ⛴️ #ERNeu #ShareCareCure

Happy New Year to all! 🥳
Start 2022 off right by registering for the next VASCERN webinar: Diagnostic and Management Pathway for #VenousMalformations w/ @LaurenceBoon2 from @ClinUnivStLuc here: https://forms.gle/yUXeTtPwP4mixfBM7
📅Thursday January 20th, 2021 at 5PM (CET)
#ERNeu #VASCA

Follow us on

Newsletter