For patients with CMTC and Other Vascular (bloodvessel) Malformations, their families & healthcare providers

CMTC-OVM is a worldwide non-profit patient organization that aims to improve the quality of life of people suffering from vascular abnormalities (blood vessel abnormalities), such as CMTC, their families, and stimulate scientific research into these disorders.

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Prof. Dr. Jan Peter Balkenende

Former Prime Minister, External Senior Advisor to EY, Professor Erasmus University, Ass. Partner Hague Corporate Affairs.

Dr. Yann Le Cam

CEO EURORDIS

Pamela Gavin

Executive Vice President NORD – USA

Upcoming events

October 2022
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LIVE WITH…

“As if she already understands exactly that it’s part of her.”

Sanne

GROWING UP WITH…

“I have never seen myself as different from other children”

Eden Quine-Taylor (16)

LIVING WITH…

“Enjoy what she can do and try not to worry”

Marcia Brands

Your support is powerful

Our worldwide non-profit organization, active since 1997, consists entirely of motivated volunteers. We can always use support in many areas. Options are for instance as sponsor (by means of eg. products, services and money) but also as volunteer, member and donor.

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REGISTER AS MEMBER

Membership of our organization offers a lot! Think for example of full access to our website, our international Family Days and Conferences in the Netherlands! Contact with other patients, families and health care providers is crucial!

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CONTRIBUTE WITH A DONATION

Do you want to make a concrete contribution to improving the quality of life for people with a rare disease?

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SPONSOR OUR ACTIVITIES

Becoming a sponsor of our organization also increases the (global) visibility of your company and shows your social face. Becoming a sponsor is a concrete interpretation of Corporate Social Responsibility / Involvement. We have sponsors from different companies who make an important contribution in various ways.

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BECOME VOLUNTEER

Voluntary work in our organization contributes to your personal development. We often offer challenging work in an international and dynamic environment. As a volunteer, you can get a good expense allowance. We have drawn up volunteer profiles for practically all roles.

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Intensive and #productive sessions across all #working groups are under way!

Many #webinars, #research papers + pills of #knowledge coming soon from the discussions at #VASCERNDays2022

#rarediseases #ERNeu

Great #brainstorming session at #VASCERNDays2022.

Lots of #discussions & #ideas to expand the #network, #collaborate with more organisations, and raise more #awareness on #rare vascular diseases.

#rarediseases #ERNeu #conference

We have a special track for youngsters! During the CMTC-OVM Member conference 2022 on October 29/30 we have a special program to entertain en connect youngsters. Will you wear a kilt during the highland games? Programm and registration: https://bit.ly/3LGJvFp

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