Name: EADV
Start: 2024-09-25
End: 2024-09-28
Location: Amsterdam

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For people with CMTC and Other Vascular Malformations

CMTC-OVM is a worldwide non-profit community that aims to improve the quality of life of people suffering from vascular abnormalities (blood vessel abnormalities), such as CMTC, their families, and stimulate scientific research into these disorders.

25-07-2024

Argentina – Josefina Obiglio

25-07-2024

Blog Katie Allen July 2024

28-06-2024

Blog Katie Allen June 2024

21-06-2024

Blog Ami Hataya June 2024

UPCOMING EVENTS

September 2024

25 - 28 Sep

EADV

Wednesday, Amsterdam

EVENT DETAIL

October 2024

25 - 27 Oct

Members conference

Friday, ISVW

EVENT DETAIL

No event found!

I am:

PROF. DR. JAN PETER BALKENENDE

Former Prime Minister, External Senior Advisor to EY, Professor Erasmus University, Ass. Partner Hague Corporate Affairs.

DR. YANN LE CAM

CEO Eurordis

personal stories

“As if she already understands that it is part of her.”

SANNE

“I have never seen myself as different from other children”

EDEN QUINE-TAYLOR

“Enjoy what she can do and try not to worry”

MARCIA BRANDS

Lorem Ipsum is simply dummy text of the printing and typesetting industry. Lorem Ipsum has been the industry’s standard dummy text ever since the 1500s, when an unknown printer took

REGISTER AS MEMBER

Membership of our organization offers a lot! Think for example of full access to our website, our international Family Days and Conferences in the Netherlands! Contact with other patients, families and health care providers is crucial!

CONTRIBUTE WITH A DONATION

Do you want to make a concrete contribution to improving the quality of life for people with a rare disease?

SPONSOR OUR ACTIVITIES

Becoming a sponsor of our organization also increases the (global) visibility of your company and shows your social face. Becoming a sponsor is a concrete interpretation of Corporate Social Responsibility / Involvement. We have sponsors from different companies who make an important contribution in various ways.

BECOME VOLUNTEER

Voluntary work in our organization contributes to your personal development. We often offer challenging work in an international and dynamic environment. As a volunteer, you can get a good expense allowance. We have drawn up volunteer profiles for practically all roles.

Twitter feed

CMTC-OVM @cmtcovm ·

23 Jun

🚨LAST CALL for the Efteling on July 6! Registration closes today! Register quickly via https://bit.ly/4ceNe9I

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CMTC-OVM @cmtcovm ·

21 Jun

Registration for the family day at the Efteling on July 6 closes Sunday! Register quickly via https://bit.ly/3VNHP3T

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Retweet on Twitter CMTC-OVM Retweeted

GoPI3Ks (Genetic Overgrowth PI3K Support) @gopi3ks ·

17 Jun

New article from the team at: @CanaudLab released today:
new mouse models of capillary venous malformations
(CVM), physiopathology and treatment of a cohort of 25 patients with PIK3CA or
TEK CVM: https://www.nature.com/articles/s41392-024-01862-9

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our community

Membership in our organization offers a lot! Think for example of full access to our website, our international Family Days and Conferences in the Netherlands! Contact with fellow sufferers is crucial! Membership in our organization can be reimbursed by your health insurer.

NEWSLETTER

ABOUT CMTC-OVM

CMTC-OVM is a global non-profit patient organization based in the Netherlands

ADRES

CMTC-OVM Koninksweg 1 7064 KH Silvolde Nederland