Traditionally, Rare Disease Day is organized worldwide on the last day of February. We have also been doing this for years.
We have also developed material ourselves and we also make it available to our Patient Advocates so that they can make their own version for their country.
Former Royal Palace Soestdijk
Our organization is an active and sparkling organization where the sparks fly!
Our Eden from England bakes rare disease day eggs!
The video of our ERN VASCERN
The Dutch video
