Our website contains a public section and a member section. The member area includes a large number of presentations and reports. In our website we have also included a private Community for members only. For us, privacy of your data is our primary concern. In this Community area you can have contact with other members, including private conversations, sharing photos and much more.
Not only can you read personal stories, but we also have ‘blogs’ in which personal stories are shared. You are welcome to write your personal story and regularly share a ‘blog’ article.
We know from experience that you can not only have medical challenges, but also psychological (e.g. self-image) and psychosocial challenges (e.g. at school and at work). We have developed a large amount of information material about this in several languages. During our events you can discuss these topics with others.