Fellow contact is one of our most important activities.
The main goal of contact is to bring together patients and their families. Since we are active globally, this means that our members are scattered all over the world. Unfortunately, it is not possible for everyone to come to the Netherlands for our Conference.
We as an organisation also live a variety of international conferences whenever possible and if we travel privately we try to meet as many patients and their families as possible. In August 2019 we were in Bratislava for a few days and met two families there. We have been able to answer many questions and offer them the opportunity to get in touch with our medical advisors directly.
