European Research Project NARRATIVE Launched
The new project NARRATIVE of the VASCA Working Group (of which CMTC-OVM is a member) within the European Reference Network VASCERN aims to gain more knowledge about the course and treatment of rare vascular anomalies.
Vascular anomalies are rare and sometimes complex and difficult to treat. NARRATIVE is establishing a European registry to collect data on disease progression, quality of life, and genetic backgrounds.
The goal: better therapies, more targeted diagnostics, and improved quality of life.
Who can participate?
Anyone with a vascular malformation (blood vessel disorder such as CMTC, DCMO, or Klippel-Trenaunay). All ages – including children – are invited to participate.
The study will start in Germany, initially in Freiburg. If you are being treated there, your experiences and data can help move this research an important step forward.
By participating, you support:
1. A better understanding of these rare diseases.
2. The development of personalized treatments.
3. New therapies for future generations.
Interested?