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Home
Pedia
CMTC
Description
Photo gallery
Possible complications
Possible complications by location
Isolated and Classic CMTC
Laser treatment
Our long journey to the diagnosis CMTC
Abbreviations & definitions
Dr. van Lohuizen
CMTC articles
OVM
AV malformation
Surgical Resection of an Arteriovenous Malformation
Capillary malformation
CMTC (OVM)
CLOVES
Complex mixed malformation
Congenital hemangioma (NICH/RICH)
Diffuse Capillary Malformation with Overgrowth (DCMO)
Granuloma telangiectaticum
Hemangio-endothelioom
Infantile hemangioma
Klippel-Trenaunay
Lymphatic malformation
Port-wine stain
Young people with port-wine stains in high school
Stork bite
Sturge-Weber
The Effects of Surge Weber on Mouth and Teeth
Teleangiectasias
Tufted angioma
Venous malformation
Clinical features of vascular malformations and associated gene mutations
New Device Clears Veins in Cases of Serious Thrombosis
Multidisciplinary consultation
Treatment of Vascular Malformations with Interventional Radiology
Treatment 10%
Laser treatment OVM
Skin
Skin aging
Melanomas & moles
Skin therapy
UV radiation
Psychology
After birth
Reactions environment
State child
School and friends
After diagnosis
Potential impact of medical intervention on very young children
Anxiety and pain management in children
On the breach for a child-oriented approach
Medical supervision
Bullying
Learning to cope with your condition/vascular anomaly
Possible consequences
Acceptance
The beginning of the end of the relationship
Meet Chloe
Brother or sister ill
Live like an animal
Burden of disease
eHealth
Telehealth and medical diagnosis
Digital health
Virtual nurse
Genetics
The genetic cause of vascular malformations: an update
Genetics and vascular malformations
Reverse phenotyping in patients with capillary blood vessel abnormalities
One swallow doesn’t make spring (summer) yet
Searching for the genetic cause of vascular anomalies (such as CMTC)
CMTC and genetic mutations
Genetics glossary
Pedia other
Role of patient organisations in healthcare
European Patient Advocay Groups (ePAG’s)
European Reference Networks (ERN’s)
ISSVA classification
Decide together
Patient’s voice
Rare diseases barometer
New developments laser
Patient’s rights NL
Rating healthcare providers
Holistic person-centred care
State of the art activities rare diseases Europe
Sirolimus
Research for complications with sirolimus
Articles sirolimus
Alpelisib
Alpelisib approved by FDA for treatment of PROS
Alpelisib articles and video material
Foreign health care in Europe
Knowledge base
Links websites
European Reference Networks (ERN’s)
Skin diseases organisations
Other organisations
Patient websites
Collaboration
Vascular diseases organisations
Rare diseases organisations
Hospitals
FAQ’s
FAQ CMTC
FAQ DCMO
FAQ Psychology
FAQ Port Wine Stain
Videos
Information
Promotion
Other
Documents
News
Latest news
Events
External conferences intro
Newsletters
Members
Registration
Membership registration
Become a donor
One time donation
Medical advice
Personal medical advice
International Patient Center
Medical diagnosis facts
Member conferences
Netherlands
Canada
USA
Family Days
Spring meeting days
Personal stories
Blogs
Be informed
Social media
Social media channels
Social media free?
Newsletter
Medical alarm
Visit Netherlands
Ronald McDonald vacation homes
Family messages
Activities
Genetic research
Participation
Status
Information folders
Request brochures/booklets
AVM folder
CMTC folder
DCMO folder
KTS folder
Siblings folder
Psychology folder
After the diagnosis brochure
Parents Support Guide
Teachers brochure
VASCA Magazine
Conversation health care provider folder
General Practitioner brochure
Patient journey
Patient included
Online services
Patient advocacy
Overview per country
Experiences patient advocates
Encouragement program
Become patient advocate?
Agenda October 2023
Grandparents
Way of working
Training patient advocate
Report PA training 2022
Webinars
Overview & registration webinars
Webinar reports
External conferences
Conference participation
CORD
EADV
Eurordis
Genetic Alliance
Global Skin Foundation
ICORD
ISSVA
NORD
VBF
Rare diseases day (Netherlands)
Other conferences
Community voice
Projects
Organisation
About our organisation
Board
contact
Advisory council
Annual reports
Financial committee
Policy plan
Anniversary booklet 25 years CMTC-OVM
Budgets
Budget 2023
Budget 2022
Budget 2021
Budget 2020
Budget 2019
Certifications
Code of conduct
Influence & participation
Impact & range
Complaints
Internal regulations
Conflict of interests
Act on Management and Supervision of Legal Entities (WBTR)
Proclaimer
Advisors
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Collaboration
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Your rights
Statement
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Your privacy, our concern
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sponsors
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Our volunteers
Profiles
Experience Experts
Community
Log in
Registration
One time donation
Home
Pedia
CMTC
Description
Photo gallery
Possible complications
Possible complications by location
Isolated and Classic CMTC
Laser treatment
Our long journey to the diagnosis CMTC
Abbreviations & definitions
Dr. van Lohuizen
CMTC articles
OVM
AV malformation
Surgical Resection of an Arteriovenous Malformation
Capillary malformation
CMTC (OVM)
CLOVES
Complex mixed malformation
Congenital hemangioma (NICH/RICH)
Diffuse Capillary Malformation with Overgrowth (DCMO)
Granuloma telangiectaticum
Hemangio-endothelioom
Infantile hemangioma
Klippel-Trenaunay
Lymphatic malformation
Port-wine stain
Young people with port-wine stains in high school
Stork bite
Sturge-Weber
The Effects of Surge Weber on Mouth and Teeth
Teleangiectasias
Tufted angioma
Venous malformation
Clinical features of vascular malformations and associated gene mutations
New Device Clears Veins in Cases of Serious Thrombosis
Multidisciplinary consultation
Treatment of Vascular Malformations with Interventional Radiology
Treatment 10%
Laser treatment OVM
Skin
Skin aging
Melanomas & moles
Skin therapy
UV radiation
Psychology
After birth
Reactions environment
State child
School and friends
After diagnosis
Potential impact of medical intervention on very young children
Anxiety and pain management in children
On the breach for a child-oriented approach
Medical supervision
Bullying
Learning to cope with your condition/vascular anomaly
Possible consequences
Acceptance
The beginning of the end of the relationship
Meet Chloe
Brother or sister ill
Live like an animal
Burden of disease
eHealth
Telehealth and medical diagnosis
Digital health
Virtual nurse
Genetics
The genetic cause of vascular malformations: an update
Genetics and vascular malformations
Reverse phenotyping in patients with capillary blood vessel abnormalities
One swallow doesn’t make spring (summer) yet
Searching for the genetic cause of vascular anomalies (such as CMTC)
CMTC and genetic mutations
Genetics glossary
Pedia other
Role of patient organisations in healthcare
European Patient Advocay Groups (ePAG’s)
European Reference Networks (ERN’s)
ISSVA classification
Decide together
Patient’s voice
Rare diseases barometer
New developments laser
Patient’s rights NL
Rating healthcare providers
Holistic person-centred care
State of the art activities rare diseases Europe
Sirolimus
Research for complications with sirolimus
Articles sirolimus
Alpelisib
Alpelisib approved by FDA for treatment of PROS
Alpelisib articles and video material
Foreign health care in Europe
Knowledge base
Links websites
European Reference Networks (ERN’s)
Skin diseases organisations
Other organisations
Patient websites
Collaboration
Vascular diseases organisations
Rare diseases organisations
Hospitals
FAQ’s
FAQ CMTC
FAQ DCMO
FAQ Psychology
FAQ Port Wine Stain
Videos
Information
Promotion
Other
Documents
News
Latest news
Events
External conferences intro
Newsletters
Members
Registration
Membership registration
Become a donor
One time donation
Medical advice
Personal medical advice
International Patient Center
Medical diagnosis facts
Member conferences
Netherlands
Canada
USA
Family Days
Spring meeting days
Personal stories
Blogs
Be informed
Social media
Social media channels
Social media free?
Newsletter
Medical alarm
Visit Netherlands
Ronald McDonald vacation homes
Family messages
Activities
Genetic research
Participation
Status
Information folders
Request brochures/booklets
AVM folder
CMTC folder
DCMO folder
KTS folder
Siblings folder
Psychology folder
After the diagnosis brochure
Parents Support Guide
Teachers brochure
VASCA Magazine
Conversation health care provider folder
General Practitioner brochure
Patient journey
Patient included
Online services
Patient advocacy
Overview per country
Experiences patient advocates
Encouragement program
Become patient advocate?
Agenda October 2023
Grandparents
Way of working
Training patient advocate
Report PA training 2022
Webinars
Overview & registration webinars
Webinar reports
External conferences
Conference participation
CORD
EADV
Eurordis
Genetic Alliance
Global Skin Foundation
ICORD
ISSVA
NORD
VBF
Rare diseases day (Netherlands)
Other conferences
Community voice
Projects
Organisation
About our organisation
Board
contact
Advisory council
Annual reports
Financial committee
Policy plan
Anniversary booklet 25 years CMTC-OVM
Budgets
Budget 2023
Budget 2022
Budget 2021
Budget 2020
Budget 2019
Certifications
Code of conduct
Influence & participation
Impact & range
Complaints
Internal regulations
Conflict of interests
Act on Management and Supervision of Legal Entities (WBTR)
Proclaimer
Advisors
Ambassadors
Collaboration
Privacy
Your rights
Statement
Access control
Data registration
Your privacy, our concern
Secure e-mail
Privacy & security tips
Our infrastructure
Donations
Sponsor
sponsors
Volunteer
Our volunteers
Profiles
Experience Experts
Community
Log in
Registration
One time donation
Knowledge base
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