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    For people with CMTC and Other Vascular Malformations

    CMTC-OVM is a worldwide non-profit community that aims to improve the quality of life of people suffering from rare vascular abnormalities (blood vessel abnormalities), such as CMTC and Klippel-Trenaunay, their families, and stimulate scientific research into these disorders.

    READ MORE ABOUT OUR ORGANISATION

    Interviews

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    LATEST NEWS AND ACTIVITIES
    Buenos Aires

    18-03-2025

    First Family Day in Argentina

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    rare disease day

    05-02-2025

    CMTC-OVM Rare Disease Day 2025 video

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    29-01-2025

    Blog Arianna Faro January 2025

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    25-01-2025

    Skin at school

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    More latest news

    UPCOMING EVENTS

    May 2025
    July 2025
    September 2025
    October 2025
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    I am:

    Have a vascular malformation
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    healthcare professional
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    PROF. DR. JAN PETER BALKENENDE

    Former Prime Minister, External Senior Advisor to EY, Professor Erasmus University, Ass. Partner Hague Corporate Affairs.

    DR. YANN LE CAM

    CEO Eurordis

    personal stories

    “As if she already understands that it is part of her.”

    SANNE

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    “I have never seen myself as different from other children”

    EDEN QUINE-TAYLOR

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    “Enjoy what she can do and try not to worry”

    MARCIA BRANDS

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    Your support is powerful
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    REGISTER AS MEMBER

    Membership of our organization offers a lot! Think for example of full access to our website, our international Family Days and Conferences in the Netherlands! Contact with other patients, families and health care providers is crucial!
    register as member

    CONTRIBUTE WITH A DONATION

    Do you want to make a concrete contribution to improving the quality of life for people with a rare disease?
    donate

    SPONSOR OUR ACTIVITIES

    Becoming a sponsor of our organization also increases the (global) visibility of your company and shows your social face. Becoming a sponsor is a concrete interpretation of Corporate Social Responsibility / Involvement. We have sponsors from different companies who make an important contribution in various ways.
    sponsor

    BECOME VOLUNTEER

    Voluntary work in our organization contributes to your personal development. We often offer challenging work in an international and dynamic environment. As a volunteer, you can get a good expense allowance. We have drawn up volunteer profiles for practically all roles.
    become a volunteer

    Twitter feed

    Retweet on Twitter CMTC-OVM Retweeted
    Avatar Miikka. Vikkula @miikkavikkula ·
    16 Jan

    The exciting, complete VAC 2025 program is now online! https://vacure-conference.net/index.php/program-test/
    Don't wait to register! https://vacure-conference.net/

    @vascern @hevas_nl @VASCAPA @CMTCOVM @ISSVA_org @PTENFoundation @LGDA_EU @LGDAlliance @AtavistikBio @PalvellaTX

    Reply on Twitter 1879940520514076695 Retweet on Twitter 1879940520514076695 7 Like on Twitter 1879940520514076695 14 Twitter 1879940520514076695
    Retweet on Twitter CMTC-OVM Retweeted
    Avatar Miikka. Vikkula @miikkavikkula ·
    20 Dec

    #VAC2025 is approaching. The exciting program will be online 2025. Look for intense discussions with numerous colleagues and company sponsors that are also present. Lots of interest in developing drug therapies for vascular anomalies.
    @vascern @VASCAPA @CMTCOVM @hevas_nl

    Reply on Twitter 1870185329673592939 Retweet on Twitter 1870185329673592939 4 Like on Twitter 1870185329673592939 12 Twitter 1870185329673592939
    Retweet on Twitter CMTC-OVM Retweeted
    Avatar Miikka. Vikkula @miikkavikkula ·
    19 Dec

    Our latest educational review is now published in Hematology (https://ashpublications.org/hematology/article/2024/1/700/526188)
    Molecular landscape and classification of vascular anomalies. I hope you find it useful. @VASCAPA @hevas_nl @CMTCOVM @vascern @ISSVA_org @EVB_Org @vascularbiology @Leducq_ReVAMP

    Reply on Twitter 1869671317714411577 Retweet on Twitter 1869671317714411577 6 Like on Twitter 1869671317714411577 18 Twitter 1869671317714411577

    our community

    Membership in our organization offers a lot! Think for example of full access to our website, our international Family Days and Conferences in the Netherlands! Contact with fellow sufferers is crucial! Membership in our organization can be reimbursed by your health insurer.

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    ABOUT CMTC-OVM

    CMTC-OVM is a global non-profit patient organization based in the Netherlands

    ADRES

    CMTC-OVM Koninksweg 1 7064 KH Silvolde Nederland

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