South Africa – Erika & Leon Whitlock
We live in South Africa. Both of us work in the medical and pharmaceutical industry. We recently joined the organization (2023), when our daughter was born with what looked like severe port wine stains all over her body. Research into her condition of DCMO and local rare disease connections brought us to CMTC OVM NL […]
Blog Katie Allen November 2023
October was a busy month packed full heading to the Netherlands for the CMTC-OVM Patients’ Advocate Training and the Members’ Conference. I also had the fortunate opportunity to visit The Hague and see the Peace Palace. It is always exciting to meet other patients and families walking this rare vascular malformation path. The chance to […]
Events 2024
Thanks to the new subsidy scheme from the Dutch Ministry of Health, Welfare and Sport, we now receive €75,000 institutional subsidy. This allows us to organize additional activities such as a family weekend! In any case, we will now organize the following activities in 2024: Family weekend in May. Family Day in July. Members conference […]
EADV 2023 – Berlin
This year the global EADV (European Academy of Dermatology & Venereology) conference was organized in Berlin from October 11 – 14, 2023. It was another large conference with more than 600 speakers from more than 50 different countries with a total of 180 sessions and 15,800 participants. CMTC-OVM was represented by: Laurens Rorive, Naomi Rorive […]
