10. Pregnancy, family planning & vascular malformations
Our CMTC-OVM organization has been participating in the European Reference Networks (ERNs) for many years. We are a member of ERN VASCERN and ERN Skin. Within ERN VASCERN, a Transversal Pregnancy Working Group has worked on this practical booklet, “What you need to know about family planning, pregnancy, delivery and contraception when living with a […]
13. Communication improvement between healthcare professionals and rare disease patients & caregivers
Our CMTC-OVM organization has been participating in the European Reference Networks (ERNs) for many years. We are a member of ERN VASCERN and ERN Skin. Within ERN VASCERN, there is a Transversal Psychology Working Group, of which we are also a part. Together with a European team, primarily consisting of psychologists, we have worked on […]
09. Living Loss
Here you find a small book with information about the grief that comes with losing a loved one Living Loss German Living Loss English Living Loss Dutch Living Loss Spanish Living Loss Italian Living Loss French
11. Teachers brochure
A practical brochure for students to take to school. Teachers brochure in multiple languages
08. Parents Support Guide
A series of practical booklets for parents during the different phases of their child’s life Parents Support Guide in multiple languages
03. DCMO folder
A practical folder about DCMO. The DCMO folder in multiple languages
01. AVM folder
A practical folder about AVM. The AVM folder in multiple languages
04. KTS folder
A practical folder about KTS. The KTS folder in multiple languages
16. Patient included
Talking to the patient instead of talking about the patient. Patient included brochure
15. Poster CMTC patient journey
A possible journey for a CMTC patient and family. Poster CMTC patient journey