WCRSD 2024 – Paris
For the second time, the World Congress on Rare Skin Diseases was organized in Paris from June 12 to 14. The number of attendees was around 400. This congress brings together doctors and patient representatives from around the world for rare skin diseases. There was a large representation of patient advocates from various countries in […]
Blog Katie Allen September 2024
The last topic I wanted to cover in this little series about the transition from pediatrics to adult care was the hardest part for me, the loss of the team approach to my condition. In the BC Children’s Hospital, where I had my pediatric care, I had an incredible vascular malformation team, which consisted of […]
EADV 2024 – Amsterdam
This year, the global EADV (European Academy of Dermatology & Venereology) conference was held in Amsterdam from October 25 to 28, 2024. The congress consisted of 180 sessions, more than 650 speakers, and over 17,000 participants from around the world. The CMTC-OVM delegation consisted of two people: Laurens Rorive and Lex van der Heijden. We […]
Added value patient organisations for medical professionals
As one of the many Patient Organizations, we visit all kinds of conferences with the main goal of making the patient’s voice heard and contributing to improving the quality of life of the patient and his/her family. Because what is it really about? The patient! And what is a doctor doing? The patient too! It […]
ISSVA 2024 – Madrid
From May 7-10, 2024, ISSVA (International Society for the Study of Vascular Anomalies) organized a conference in Madrid, Spain. Approximately 800 participants attended in person, and around 200 participated online. On the first day, topics covered included vascular tumors, vascular malformations, pathology, interventional radiology, and surgery. The second day delved deeper into vascular tumors and […]
Naevus Outreach 2024 – St. Louis (USA)
This year, the Nevus Outreach conference took place in Saint Louis, Missouri. Representing Nevus Netwerk Nederland (NNN), Janine van den Eijnden (NNN buddy) and Marjolein van Kessel (NNN board member) attended the congress. What does Nevus Outreach do to be successful? What inspires us? What information and experiences are we bringing home? Marjolein and Janine […]
Agenda and Registration for Members’ Conference Netherlands 2024
It’s time once again for our Global Members’ Conference in the Netherlands 2024! The conference begins on the evening of Friday, October 25th, and concludes after lunch on Sunday, October 27th. This year, we have another very diverse agenda with various speakers, a panel to answer your questions, chair massages, excellent lunch and dinner buffets, […]
Blog Katie Allen August 2024
One of the most obvious changes when moving from pediatrics to adult care is the changes in the hospital experience. This is a topic that in British Columbia, Canada is something that medical professionals are trying to address but seem to be having a hard time addressing the transition from a truly patient perspective. It […]
Help Matthias, who has a port-wine stain
Hi everyone! 🤍 My name is Matthias, and I was born with a port-wine stain. This personal experience has inspired me to pursue a career in dermatology, where I hope to give back to the amazing community that has supported me. As part of my studies, I’m conducting research on the psychological and social impacts […]
Family Day 2024: Efteling
On Saturday, July 6th, participants gathered around 9:30 AM at the bus parking lot near the Efteling. In total, nearly 80 people from Belgium, Germany, and the Netherlands were present. The weather was cloudy, and there was a bit of rain at the beginning, but the sun soon came out. All attendees received a bag […]