Blog Arianna Faro February 2024
Hi there! My name is Arianna Faro; I am 32 years of age and was diagnosed with Klippel-Trenaunay syndrome at birth. KTS manifests itself a bit differently in each patient, but for me it impacts my left leg, foot, private areas and heart. As a result of the condition, I have endured over 50 surgeries […]
Prof. Dr. Ilona Frieden (USA) – Medical advisor
Prof. Dr. Frieden is a Professor of Pediatrics and Dermatology, former Vice-Chair and former Chief of the Division of Pediatric Dermatology at the University of California, San Francisco. She received her medical degree from the University of California, San Francisco, where she also completed a pediatric internship and residency as well as a dermatology residency. […]
CMTC-OVM Members conference Netherlands 2023
Around 65 people attended our Annual General Meeting (AGM) including a limited number participated ‘online’. Participants were from Belgium, Canada, Germany, England, Japan/Singapore, the Netherlands, Slovakia, USA and South Africa. Membership meeting and other items discussed As chairman of the CMTC-OVM organization, Lex opened the AGM. The minutes of the previous members AGM are approved. […]
Blog Katie Allen January 2024
One reality of having any sort of condition on the skin is The Stares. People looking at you or doing double takes as they walk by or interact with you. Obviously, these interactions are experienced more broadly than just those with skin conditions, but to speak from my own experience, I will focus on these […]
PeDRA 2023 – Atlanta (USA)
Together with Naevus Global, we participated in the PeDRA (Pediatric Dermatology Research Alliance) conference in Atlanta (USA) from November 9 – 11, 2023. The Executive Director Dr. Mike Siegel invited us. PeDRA paid part of our travel costs and we were able to participate for free in the conference of almost 400 participants from various […]
Blog Katie Allen December 2023
Happy Holidays from Canada. One question I often get asked by patients and families is about tattoos. I have multiple tattoos, including a couple on top of my marks. Like many people with vascular concerns, I had doctors discourage me from getting tattoos earlier in my life. However, as I got older, I faced the […]
Skin at school
Skin complaints are often underestimated, while research shows that the quality of life of people with chronic conditions decreases and that the impact of bullying on children with skin conditions is huge. Lack of basic knowledge about the skin is a major factor in this. The Dutch Society for Dermatology and Venereology has noticed that […]
Laser in dermatology: past, present and future
The rise of the laser in dermatology brought about a true revolution in the treatment of various skin conditions. Laser technologies have paved the way for both cosmetic and medical applications, providing dermatologists with a range of effective and safe treatment options. In this article we describe in a nutshell the history, contemporary applications and […]
Prof. Dr. Beth Drolet (USA) – Medical advisor
Prof. Dr. Drolet brings forth a wealth of experience spanning three decades in academic medicine leadership. Her career path includes pivotal roles such as Chief of the Division of Pediatric Dermatology, Medical Director of the Vascular Anomalies Center, Clinical Vice President of Ambulatory Services, and Chief Experience Officer at the Children’s Hospital of Wisconsin. In […]
Important news about sirolimus
In a groundbreaking development, the interim analysis of the large multicenter Phase III VASE (Vascular Anomaly-Sirolimus Europe) trial, using sirolimus (Rapamune from Pfizer), to address slow-flow vascular malformations has been published in JCI Insight. This marks a significant milestone in the ongoing study and provides insight into the potential efficacy of this treatment. Read more