NORD 2022 – Washington DC
On October 17 and 18, 2022, the US National Organization for Rare Disorders (NORD®) hosted the Conference on Rare Diseases and Orphan Drugs. More than 830 enthusiastic attendees from around the world gathered to address and take action on the opportunities and challenges facing the rare disease community.Items on the agenda included accelerated approval, newborn […]
EADV 2022 – Milan
Van 7 tot en met 10 september 2022 werd in Milaan weer European Academy of Dermatology and Venereology (EADV) georganiseerd. Het aantal deelnemers was 14.000 uit meer dan 120 landen over de hele wereld en 600+ sprekers in 170 verschillende sessies. Stand Onze organisatie had samen met Naevus Global een stand tijdens deze conferentie. Wij […]
Eurordis 2021 – online
The annual conference of Eurordis (European Organization for Rare Diseases) this year was only an online member meeting and not a conference. As a result, there is no report.
Eurordis 2022 – online
The European Conference on Rare Diseases and Orphan Products is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning, and conversation take place, forming the groundwork to shape future rare disease policies. The 11th edition of the European Conference on Rare Diseases & Orphan Products (ECRD) was a virtual event […]
Skin in the class
Many people do not consider the important role of the skin in everyday life. An organ that is not perceived as such, especially if there is nothing wrong with it at first glance. It will be different if the skin is not completely standard due to, for example, a deviation in the pigment or if […]
WCRSD 2022 – Paris
The first Global Congress on Rare Skin Diseases (WCRSD) was held in Paris from 7 to 9 June 2022. The main aim was to bring together medical teams, scientists, patient representatives, policymakers and industrial teams. The goal was to encourage collaboration between specialists from different areas and countries and to encourage more research and clinical […]
ISSVA 2022 – Vancouver
The ISSVA (International Society for the Study of Vascular Anomalies) is a multidisciplinary international organization of doctors, scientists and healthcare providers united by an interest in vascular anomalies. Once every 2 years, the ISSVA organizes a worldwide conference. For 2022 the conference was held in Vancouver (Canada) from May 10-13. We were able to combine […]
CMTC-OVM Members conference Netherlands 2022
Around 70 people took part in our conference (a limited number participated ‘online’ via ‘online streaming’). Participants came from Belgium, Canada, Germany, England, Georgia, the Netherlands, Austria and Sweden. During our conference we also celebrated our 25th anniversary. We received, among other things, congratulations via a video message from Prof. Dr. Jan Peter Balkenende (Former […]
Webinar 23 April 2022 – Vascular malformations and pregnancy
Dr. Naomi van Hout is a plastic surgeon focusing on vascular malformations. She is the successor of prof Van der Horst who is medical advisor of CMTC-OVM. In this webinar she talks about vascular malformations and pregnancy. Van Hout is in the AVA-team of the Amsterdam Medical Centre (AMC, expertisecentre for congenital vascular malformations). In […]
Dr. Kakha Bregvadze (Georgia) – Medical advisor
Kakha Bregvadze, MD., is a clinical dermatologist and a teaching and research staff member at the Department of Molecular and Medical Genetics at Tbilisi State Medical University, Tbilisi, Georgia. His primary interest lies in the field of genodermatosis, rare genetic conditions and health-related quality of life in patients with various rare conditions. Currently he is […]