CMTC-OVM Member conference Netherlands 2021
The year 2021 is again a special year, especially because of the worldwide COVID-19 pandemic. Normally we organize our annual worldwide members conference in a conference center in the Netherlands. This year we chose not to cancel our conference but to organize it ‘online’. It was a bigger success than we expected! Members who would […]
Georgia – Prof. Dr. Tinatin Tkemaladze
Prof. Dr. Tinatin Tkemaladze is the head of the Department of Molecular and Medical Genetics at Tbilisi State Medical University (TSMU), as well as consultant clinical geneticist at several major pediatric hospitals. Tinatin has special interest in inherited metabolic diseases presenting as childhood neurodevelopmental disorders and syndromes with dysmorphic features. Over the last several years […]
Christmas & New Year’s Wishes 2022
The Board of Directors of our CMTC-OVM organization wishes everyone a wonderful Christmas and a healthy New Year 2022!
Looking for new treasurer (the Netherlands)
Our treasurer Jacob is retiring. Jacob applied for treasurer in the year 2014 after a call we made through a volunteer website. He has not only helped our organization enormously with the professionalization of the financial administration but also in legal and tax areas. Thanks to Jacob, we have been able to automate a lot […]
25 years CMTC-OVM
On January 22, 2022, our organization will be 25 years young! We will celebrate this during our worldwide members conference in October 2022. Do you have ideas and/or do you want to help with the organization? Please contact us
VASCERN Conference 2021 – Paris
From September 7 to 9, 2021, the annual VASCERN congress was organized in Paris. VASCERN is one of the European Reference Networks (ERNs) in the field of rare multi-systemic vascular diseases. We as an organization are affiliated with both the ERN VASCERN and SKIN. All healthcare providers are part of recognized reference/excellence centers in their […]
Prof. Dr. Laurence Boon (Belgium) – Medical advisor
Prof. Dr. LM Boon became a Plastic Surgeon in 1996 and obtained her PhD in 2003 at the Faculty of Medicine in UCL, Brussels. She spent two years at the Children’s Hospital, Boston, Harvard Medical School, under the supervision of Prof. John B. Mulliken, to specialize in vascular anomalies. She is the Coordinator of the […]
Dr. Andrea Diociaiuti (Italy) – Medical advisor
Andrea Diociaiuti is currently responsible for the Center of Chronic and Complex Disease and Genodermatoses of Bambino Gesù Children’s Hospital in Rome. Graduated in Medicine in 1995 and specialized in Dermatology and Venereology in 1998 at the University of Sacred Hearth in Rome. He achieved his Ph.D. in Oncological Dermatology and then a II level […]
United Kingdom – Julia Putman (heeft zich teruggetrokken op 15 jan. 2022)
[vc_section full_width=”stretch_row” css=”.vc_custom_1585128400841{background-color: #576283 !important;}”][vc_row][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row][vc_column width=”1/3″][/vc_column][vc_column width=”2/3″][vc_empty_space][mk_fancy_title strip_tags=”true” tag_name=”h1″ color=”#ffffff” size=”60″ line_height=”90″ font_weight=”bolder” margin_bottom=”0″ font_family=”none”]Julia Putman (United Kingdom)[/mk_fancy_title][mk_divider style=”thick_solid” divider_width=”custom_width” custom_width=”70″ align=”left” border_color=”#a1aabe” visibility=”hidden-sm”][mk_fancy_title strip_tags=”true” tag_name=”h5″ color=”#ffffff” size=”16″ font_weight=”400″ margin_bottom=”0″ font_family=”none”]Patient Advocate[/mk_fancy_title][/vc_column][/vc_row][vc_row][vc_column][vc_empty_space height=”64px”][/vc_column][/vc_row][/vc_section][vc_section full_width=”stretch_row” css=”.vc_custom_1585137324203{background-color: #ffffff !important;}”][vc_row][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row][vc_column width=”1/3″][vc_wp_custommenu title=”Patient Advocacy” nav_menu=”275″ el_class=”leftsubmenu”][/vc_column][vc_column width=”2/3″][mk_image src=”https://www.cmtc.nl/wp-content/uploads/2021/10/julia-putman-klein.jpg” image_size=”full”][vc_column_text disable_pattern=”false” margin_bottom=”10″ css=”.vc_custom_1633428780577{margin-bottom: 0px !important;}”]I’m a Therapeutic Practitioner working with […]
Ronald McDonald vacation homes
When your child is chronically ill, as a parent you want to provide the best care possible. But, there’s so much more to it. It also asks a lot of you and your family. Tension, worries, fatigue, and sometimes even misunderstanding. Perhaps it feels like you are being lived or as if you are living […]