07. After the diagnosis booklet
A practical booklet for parents after they have received a diagnosis. After the diagnosis booklet in multiple languages
06. Psychology folder
A practical folder on the psychological aspects of living with a rare disease. The psychology folder in multiple languages
05. Siblings folder
A practical folder for the siblings of a patient. The siblings folder in multiple languages
02. CMTC folder
A practical folder about CMTC. The CMTC folder in multiple languages
Contribution to the training of doctors
We have developed training material (elearning) for the European Reference Network (ERN) Skin in collaboration with Naevus Global. The purpose of ERN-Skin’s e-learning material is to train medical specialists and paramedics to improve knowledge about rare skin diseases, diagnosis and care for patients. The e-learning material includes all rare diseases involving the ERN-Skin. The learning […]
Christmas wish 2020
The CMTC-OVM Board of Directors wishes you A Merry Christmas and a Healthy & Happy New Year!
CMTC-OVM Member Conference Netherlands 2020
The year 2020 is a special year mainly because of the global COVID-19 epidemic. Normally we organize our annual global member conference in a conference center in the Netherlands. This year we chose not to cancel our conference but to organize it ‘online’. The success was greater than we expected! Members who otherwise could not […]
Our projects
In addition to our standard activities such as organizing (online) member conferences, information provision and patient advocacy, we also carry out all kinds of projects. Here too we are transparent. More information
Marleen (Netherlands)
Hello. I am Marleen. I am 28 years old (2020) and live with my husband and son of 0 years old in Zaandam. I am a speech therapist in my own speech therapy practice and in a nursing home. I love my job and I really enjoy my work. When I introduce myself to someone, […]
Do you want to become a patient advocate?
One of our most important core activities is patient advocacy. We do our best to help our (international) members in all kinds of ways and to provide them with information. Unfortunately, as a Dutch organization, we cannot offer local support to patients, families and healthcare providers in all countries. This can be arranged by people […]