Welcome to CMTC-OVM Netherlands — the international patient organization for people with a vascular malformation, as well as their parents, partners, and family members.
A rare condition often comes with many questions. How do you find the right doctor? What treatment options are available? How do you cope with uncertainty, school, work, or everyday challenges?
At CMTC-OVM, you do not have to face these challenges alone. We bring patients and families together, share reliable informat
Your benefits
- Access to up-to-date and reliable information about vascular malformations.
- Contact with other patients and parents who share the same experiences.
- Invitations to meetings, webinars, and the annual Family Weekend, Family Day and Members’ Conference.
- Newsletters with updates on research, treatments, and events.
- Opportunity to ask questions to experts and people with lived experience.
- Participation in an active community where recognition and support are central.
- The chance to contribute ideas and help build better care and greater awareness for CMTC-OVM.
What does CMTC-OVM organize?
CMTC-OVM is much more than just an information platform. We organize activities throughout the year to connect patients and families with each other.
Our activities
- Family weekends
A full weekend with a variety of activities for all ages, where you have plenty of opportunities to get to know each other.
Family weekends reports - Family Days
A pleasant and meaningful day where meeting others, relaxation, and information come together for all ages.
Family Days reports - Members’ Conference
A full weekend with a variety of activities for all ages, including presentations and workshops with doctors, researchers, and specialists on current developments and treatments.
Members’ conference reports - Peer contact (contact with fellow patients and families)
Both online and during events. Contact with people who are going through the same experience is often extremely valuable. - Awareness campaigns
During international awareness months and other campaigns, we actively raise the profile of vascular malformations. - Collaboration with clinicians and experts
We actively collaborate with specialized centers and professionals to improve knowledge and care. - Support for research and international collaboration
CMTC-OVM contributes to increasing knowledge and awareness of rare vascular disorders.
Together, we make a difference
With your membership, you not only help yourself or your family, but you also support our mission: better care, more knowledge, greater connection, and more understanding for everyone with a vascular malformation.
Whether you have just received a diagnosis or have had experience for many years — you are welcome at CMTC-OVM!
