Membership offers you a lot

You can sign up as a member of our organization with the following main benefits:

  1. Access to the entire website with a lot of video material including presentations and presentations.
  2. Access to our worldwide conference in the Netherlands and, for example, to meet many other patients and families, free personal medical advice and many other possibilities.
  3. Access to our worldwide Family Day in the Netherlands and in a fun environment to meet other patients and families.

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