ISSVA 2025 – Paris
The ISSVA (International Society for the Study of Vascular Anomalies) held another international congress from April 23–25, 2025, in Paris. A total of 410 participants attended in person and 162 online, representing 49 countries. ISSVA is the global organization in the field of vascular malformations. Photography and video recording of the sessions were not permitted, […]
Global Skin Foundation 2025 – Prague
From April 24–27, 2025, GlobalSkin hosted the Champion 2025 Conference, at the Vienna House by Wyndham Diplomat in Prague, Czech Republic. The event was attended by over 200 attendees including 163 skin patient leaders from 59 countries, along with speakers, industry partners, and key stakeholders. Themed “Champion”, the conference aimed to inspire, connect, and celebrate […]
Vascular Anomalies Patient Day 2025 – Argentina
On Saturday, April 12, 2025, the Interdisciplinary Center for Vascular Anomalies at Sanatorio Mater Deiis in collaboration with our CMTC-OVM organization organized a meeting ‘Vascular Anomalies Patient Day’ for patients, their families and healthcare professionals in Buenos Aires, Argentina. This was arranged together with our Patient Advocate Josefina and several local doctors. Because Lex attended […]
World Congress Pediatric Dermatology 2025
This was our first time attending the World Congress of Pediatric Dermatology. It was organized in Buenos Aires from April 7 to April 11, 2025. The number of participants was around 2,500 doctors from all over the world. During this congress, four of our advisors gave presentations, and doctors from many countries whom we know […]
VAC Conference 2025 – Berlin
In 2023, the ‘International Conference on Vascular Anomalies’ (VAC) was organized. In 2025, this conference was held again, this time in Berlin from February 11 to 14. Around 170 physicians, professors, researchers, and various patient organizations participated. The aim of the conference is to share the latest developments in research (basic, translational, and clinical) to […]
Rare disease day 2025
On February 28, 2025, during the National Rare Disease Day Event at Soestdijk Palace, the prestigious Rare Angel Awards were presented to Karin Veldman, Rianne Oostenbrink, and 3FM Serious Request. National Rare Disease Day Event The National Rare Disease Day Event takes place every last day of February as part of International Rare Disease Day. […]
VAC 2025 – Berlin
In 2023, the ‘international conference on Vascular Anomalies’ (VAC) was organized. In 2025, this conference was organized again and this year in Berlin from February 11 to 14. Around 170 physicians, professors, researchers and various patient organizations participated. The aim of the conference is to share the latest developments in research (basic, translational and clinical) […]
VASCERN Conference 2025 – Berlin
On February 10-11, 2025, the VASCA Winter Meeting brought together dedicated medical professionals, researchers, and patient representatives to share insights and collaborate on improving care for individuals with vascular anomalies. VASCERN is one of the European Reference Networks (ERNs) focused on rare multi system vascular diseases. As an organization, we are affiliated with both ERN […]
AIVA Conference 2025 – Austria
From March 7 to 8, 2025, the 15th Annual Conference of the Austrian Working Group for Interdisciplinary Treatment of Vascular Anomalies (AIVA) took place in St. Wolfgang am Wolfgangsee. This year, the event was held jointly with the 6th Annual Conference of DiGGefa (German Interdisciplinary Society for Vascular Anomalies e.V.). As the CMTC-OVM patient representative […]
WCRSD 2024 – Paris
For the second time, the World Congress on Rare Skin Diseases was organized in Paris from June 12 to 14. The number of attendees was around 400. This congress brings together doctors and patient representatives from around the world for rare skin diseases. There was a large representation of patient advocates from various countries in […]
