Christmas & New Year’s Wishes 2022
The Board of Directors of our CMTC-OVM organization wishes everyone a wonderful Christmas and a healthy New Year 2022!
Looking for new treasurer (the Netherlands)
Our treasurer Jacob is retiring. Jacob applied for treasurer in the year 2014 after a call we made through a volunteer website. He has not only helped our organization enormously with the professionalization of the financial administration but also in legal and tax areas. Thanks to Jacob, we have been able to automate a lot […]
25 years CMTC-OVM
On January 22, 2022, our organization will be 25 years young! We will celebrate this during our worldwide members conference in October 2022. Do you have ideas and/or do you want to help with the organization? Please contact us
Laurens & Naomi Rorive (the Netherlands) – Social media & translations
Almost immediately after the birth of our son Otis in 2019, we were faced with a medical search. The doctors at Sophia Children’s Hospital gave us confidence in the diagnostic process of which CMTC is one part. The information on the CMTC-OVM website has helped us a lot. We find it very valuable that at […]
VASCERN Conference 2021 – Paris
From September 7 to 9, 2021, the annual VASCERN congress was organized in Paris. VASCERN is one of the European Reference Networks (ERNs) in the field of rare multi-systemic vascular diseases. We as an organization are affiliated with both the ERN VASCERN and SKIN. All healthcare providers are part of recognized reference/excellence centers in their […]
Prof. Dr. Laurence Boon (Belgium) – Medical advisor
Prof. Dr. LM Boon became a Plastic Surgeon in 1996 and obtained her PhD in 2003 at the Faculty of Medicine in UCL, Brussels. She spent two years at the Children’s Hospital, Boston, Harvard Medical School, under the supervision of Prof. John B. Mulliken, to specialize in vascular anomalies. She is the Coordinator of the […]
Dr. Andrea Diociaiuti (Italy) – Medical advisor
Andrea Diociaiuti is currently responsible for the Center of Chronic and Complex Disease and Genodermatoses of Bambino Gesù Children’s Hospital in Rome. Graduated in Medicine in 1995 and specialized in Dermatology and Venereology in 1998 at the University of Sacred Hearth in Rome. He achieved his Ph.D. in Oncological Dermatology and then a II level […]
United Kingdom – Julia Putman (heeft zich teruggetrokken op 15 jan. 2022)
[vc_section full_width=”stretch_row” css=”.vc_custom_1585128400841{background-color: #576283 !important;}”][vc_row][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row][vc_column width=”1/3″][/vc_column][vc_column width=”2/3″][vc_empty_space][mk_fancy_title strip_tags=”true” tag_name=”h1″ color=”#ffffff” size=”60″ line_height=”90″ font_weight=”bolder” margin_bottom=”0″ font_family=”none”]Julia Putman (United Kingdom)[/mk_fancy_title][mk_divider style=”thick_solid” divider_width=”custom_width” custom_width=”70″ align=”left” border_color=”#a1aabe” visibility=”hidden-sm”][mk_fancy_title strip_tags=”true” tag_name=”h5″ color=”#ffffff” size=”16″ font_weight=”400″ margin_bottom=”0″ font_family=”none”]Patient Advocate[/mk_fancy_title][/vc_column][/vc_row][vc_row][vc_column][vc_empty_space height=”64px”][/vc_column][/vc_row][/vc_section][vc_section full_width=”stretch_row” css=”.vc_custom_1585137324203{background-color: #ffffff !important;}”][vc_row][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row][vc_column width=”1/3″][vc_wp_custommenu title=”Patient Advocacy” nav_menu=”275″ el_class=”leftsubmenu”][/vc_column][vc_column width=”2/3″][mk_image src=”https://www.cmtc.nl/wp-content/uploads/2021/10/julia-putman-klein.jpg” image_size=”full”][vc_column_text disable_pattern=”false” margin_bottom=”10″ css=”.vc_custom_1633428780577{margin-bottom: 0px !important;}”]I’m a Therapeutic Practitioner working with […]
Ronald McDonald vacation homes
When your child is chronically ill, as a parent you want to provide the best care possible. But, there’s so much more to it. It also asks a lot of you and your family. Tension, worries, fatigue, and sometimes even misunderstanding. Perhaps it feels like you are being lived or as if you are living […]
Members conference 2021
On Saturday October 30, 2021 we will organize our annual global members conference in the Netherlands. Due to the COVID-19/Corona virus, we unfortunately have to organize this conference ‘online’ this year. More information & registration Please note: if you have previously registered for our conference on location, please register again. We expect our conference to […]