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Prof. Dr. Barend Mees (Netherlands) – Medical advisor

Prof. Dr. Barend Mees, acting head of the Department of Vascular Surgery at MUMC+ (Maastricht, the Netherlands), is an expert in vascular surgery with many years of experience in treating complex vascular diseases. Prof. Dr. Mees studied medicine at the LUMC in Leiden and completed his training as a general and vascular surgeon at Erasmus […]

Julia Clabbers, MSc (Netherlands) – Medical advisor

Drs. Julia Clabbers works as a dermatologist at the Maastricht University Medical Center+ (MUMC+). Her areas of focus include genodermatoses (hereditary skin disorders), pediatric dermatology, and Mohs surgery. The Maastricht University Medical Center+ has been recognized by the Dutch Ministry of Health, Welfare and Sport (VWS) as a Center of Expertise for Genodermatoses. Within this […]

Prof. Dr. Eulalia Baselga (Spain) – Medical advisor

Eulalia Baselga is currently the Head of Dermatology at Hospital Sant Joan de Déu, Children’s Hospital, and an Associate Professor at the University of Barcelona. The Department of Dermatology is a member of the ERN-VASCA and ERN-Skin European networks. Her main area of research focuses on vascular anomalies, and she is currently the principal investigator […]

Prof. Dr. Ilona Frieden (USA) – Medical advisor

Prof. Dr. Frieden is a Professor of Pediatrics and Dermatology, former Vice-Chair  and former Chief of the Division of Pediatric Dermatology at the University of California, San Francisco.  She received her medical degree from the University of California, San Francisco, where she also completed a pediatric internship and residency as well as a dermatology residency.  […]

Prof. Dr. Beth Drolet (USA) – Medical advisor

Prof. Dr. Drolet brings forth a wealth of experience spanning three decades in academic medicine leadership. Her career path includes pivotal roles such as Chief of the Division of Pediatric Dermatology, Medical Director of the Vascular Anomalies Center, Clinical Vice President of Ambulatory Services, and Chief Experience Officer at the Children’s Hospital of Wisconsin. In […]

Dr. Paolo Gasparella (Austria) – Medical advisor

Dr. Paolo Gasparella is a Consultant Pediatric and Adolescent Surgeon at the Department of Pediatric and Adolescent Surgery of the Medical University of Graz (Austria). He qualified as a specialist pediatric surgeon in 2011 at the University of Padova (Italy). In the University of Padova he also obtained his PhD in Developmental Medicine and Health […]

Dr. Yakir Levin (USA) – Medical advisor

Yakir Levin, MD, PhD is a physician scientist at the Massachusetts General Hospital., where he practices laser, cosmetic, and medical dermatology. He completed his PhD in electrical engineering as well as his MD at Stanford University. After completion of his dermatology residency at Boston University, where he served as chief resident, he completed a two-year […]

Dr. Kakha Bregvadze (Georgia) – Medical advisor

Kakha Bregvadze, MD., is a clinical dermatologist and a teaching and research staff member at the Department of Molecular and Medical Genetics at Tbilisi State Medical University, Tbilisi, Georgia. His primary interest lies in the field of genodermatosis, rare genetic conditions and health-related quality of life in patients with various rare conditions. Currently he is […]

Prof. Dr. Tinatin Tkemaladze (Georgia) – Medical advisor

Prof. Dr. Tinatin Tkemaladze is the head of the Department of Molecular and Medical Genetics at Tbilisi State Medical University (TSMU), as well as consultant clinical geneticist at several major pediatric hospitals. Tinatin has special interest in inherited metabolic diseases presenting as childhood neurodevelopmental disorders and syndromes with dysmorphic features. Over the last several years […]

Drs. Elyse Verboom, MSc (Netherlands) – Medical advisor

Drs. Eylse Verboom, Msc, has been working in the Erasmus MC Sophia Children’s Hospital since 2015. From 2016 to 2021, she studied to become a general paediatrician. In 2021, she began her sub-specialism in paediatric haematology and shared care paediatric oncology. Since 2021, she has also been a part of the multidisciplinary WEVAR team (Working […]

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