Page 23 – CMTC-OVM

Rare diseases day Netherlands 2021

We have been actively participating in the global rare diseases day for years. Unfortunately, in 2021, due to the COVID-19 virus a ‘real’ day can’t be organised, but the rare diseases day will become a virtual day in 2021. Rare Disease Day takes place on the last day of February each year. The main objective of Rare […]

Niklas Rotter (Austria)

When Niklas was born in February 2016, he had large red/purple spots on his right foot, leg, buttocks and lower back. The dermatologist told us the next day that he thought he had seen something like this in a book and that he thought it could be CMTC. But he also immediately admitted that he […]

EuropaDerm initiative

We are part of the Global Skin Foundation (based in Canada) and they have started the European EuropaDERM initiative. We participated in the first (online) ‘Envisioning EuropaDERM event’ that was organized on January 29, 2021. For two hours we discussed with other (international) leaders of European patient organizations a common path for the European dermatological […]

Webinar 16 January 2021 – Vascular malformations and overgrowth

We organized our first webinar on January 16, 2021 with the topic ‘vascular malformations and overgrowth’ by Dr. Christianne van Nieuwenhoven. Treatment of vascular malformations and overgrowth Christianne van Nieuwenhoven is a plastic surgeon at the Erasmus Medical Centre in Rotterdam. She is particularly specialised in hand surgery in children. This way she deals with […]

Collaboration with ECH

We have started a new partnership with the European Connected Health Alliance (ECH). The goal of ECH is to connect organizations and individuals in the field of digital health. Currently, more than 750 organizations are affiliated with ECH from 78 countries and can reach 4.4 billion people. More information

Vaccination advice COVID-19

We are member of European Reference Networks (ERNs) and they offer a unique opportunity for physicians to work cross-border in healthcare in Europe. ERNs create a clear governance structure for knowledge exchange and care coordination across the European Union to improve access to diagnosis and treatment, as well as the provision of high-quality healthcare for […]