Christmas wish 2020
The CMTC-OVM Board of Directors wishes you A Merry Christmas and a Healthy & Happy New Year!
CMTC-OVM Member Conference Netherlands 2020
The year 2020 is a special year mainly because of the global COVID-19 epidemic. Normally we organize our annual global member conference in a conference center in the Netherlands. This year we chose not to cancel our conference but to organize it ‘online’. The success was greater than we expected! Members who otherwise could not […]
Our projects
In addition to our standard activities such as organizing (online) member conferences, information provision and patient advocacy, we also carry out all kinds of projects. Here too we are transparent. More information
Do you want to become a patient advocate?
One of our most important core activities is patient advocacy. We do our best to help our (international) members in all kinds of ways and to provide them with information. Unfortunately, as a Dutch organization, we cannot offer local support to patients, families and healthcare providers in all countries. This can be arranged by people […]
Your online privacy, our concern!
We do everything we can to protect your privacy as much as possible! We still see unsecured websites of patient organizations that maintain a member administration. Your data is not safe there with all the consequences! We had an external ‘security scan’ carried out by a company on November 2, 2020. Over the years, our […]
Conferences and webinars
During our worldwide online members conference on October 24, 2020, it appeared that this form was highly appreciated, especially by members who cannot/hardly come to our physical member conferences due to travel costs and travel time, for example. We would like to offer our members as many (online) contact moments as possible and therefore: In […]
Collaboration International Patient Center & CMTC-OVM
We have started a collaboration with the International Patient Center in Rotterdam (the Netherlands). IPC is the leading medical travel organization in the Netherlands. IPC understands that navigating a foreign healthcare system can be difficult. That is why they have put together a team of experts who know everything about incoming medical trips to the […]
Rare Diseases International & CMTC-OVM
We have once again entered into a partnership, this time with Rare Diseases International (RDI). RDI was initiated by EURORDIS-Rare Diseases Europe in partnership with the National Organization for Rare Disorders (US), the Canadian Organization for Rare Disorders, the Japanese Patient Association, the Russian Patient Union and Rare Voices Australia. RDI was launched as a […]
Agenda & registration global member conference 2020
The (concept) agenda and registration for our global member conference on the 24th of October are available! More information
6. Help by others
Guide for parents after diagnosis Help by others This section is for friends and family. Many close friends feel uncomfortable asking questions about the development or course of your child’s illness. They also often feel powerless because they do not know how to help you. Do you notice that someone who is close to you […]