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Zivver – Netherlands

Zivver

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TechSoup – Netherlands

TechSoup

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Ministry HWS – Netherlands

logo VWS

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IBM – Netherlands

IBM

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Design Delicious – Netherlands

DDCM

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Prof. Dr. Jan Peter Balkenende (Netherlands) – Supporter

Prof. Dr. Jan Peter Balkenende

One of our supporters is former Prime Minister Prof. Dr. Jan Peter Balkenende. He studied economic and social history and law at the Free University of Amsterdam. He presented his doctoral thesis on ‘Government regulation and social organizations’ and in 1993 he was named professor by special appointment. He served as prime minister from July […]

Dr. Stephen C. Groft (USA) – Ambassador

Dr. Stephen C. Groft

Dr. Stephen C. Groft has been the initiator and Director of the National Institute of Health (NIH, USA) of the Rare Diseases Office since the start in May 1983. He has been providing guidance and encouragement to rare disease patient advocates groups since the very beginning. He and his staff are well known in the […]

Lex van der Heijden – President

Lex is the father of a young lady with CMTC (she’s the reason for this organization), founder (1997) and chairman of the global organization. In the past he was ICT Project Manager and has worked for example for IBM Global Services. In 2012 he switched to devote his time and energy full-time (unpaid) to his […]

Anja Fluijt – Secretary

My name is Anja Fluijt and I am the mother of Niels born in 2004 with many spots throughout the body. By an attending paediatrician, we received a referral to the Sofia Children’s Hospital in Rotterdam within 3 months, where Dr. Oranje gave the diagnosis CMTC. For so long we are also a member of […]

The story of Sanne (Belgium)

ps21-1

My name is Sanne and on 1st July 2017, I became the proud mother of my eldest daughter. Soon after the birth, I noticed purple marks on her, but at the hospital, no-one said anything so we were not immediately concerned. I had also seen a bald spot and a lump above her ear, which […]

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