Vaccination advice COVID-19
We are member of European Reference Networks (ERNs) and they offer a unique opportunity for physicians to work cross-border in healthcare in Europe. ERNs create a clear governance structure for knowledge exchange and care coordination across the European Union to improve access to diagnosis and treatment, as well as the provision of high-quality healthcare for […]
16. Patient included
Talking to the patient instead of talking about the patient. Patient included brochure
15. Poster CMTC patient journey
A possible journey for a CMTC patient and family. Poster CMTC patient journey
14. General practitioners booklet CMTC
A practical booklet for GPs (and other healthcare providers) about CMTC. General practitioners booklet CMTC in multiple languages
12. Conversation health care provider folder
A practical folder for a discussion with a healthcare provider. Conversation with health care provider folder in multiple languages
07. After the diagnosis booklet
A practical booklet for parents after they have received a diagnosis. After the diagnosis booklet in multiple languages
06. Psychology folder
A practical folder on the psychological aspects of living with a rare disease. The psychology folder in multiple languages
05. Siblings folder
A practical folder for the siblings of a patient. The siblings folder in multiple languages
02. CMTC folder
A practical folder about CMTC. The CMTC folder in multiple languages
Contribution to the training of doctors
We have developed training material (elearning) for the European Reference Network (ERN) Skin in collaboration with Naevus Global. The purpose of ERN-Skin’s e-learning material is to train medical specialists and paramedics to improve knowledge about rare skin diseases, diagnosis and care for patients. The e-learning material includes all rare diseases involving the ERN-Skin. The learning […]