Amendment bylaws
Every year we organize our worldwide Member Conference in the Netherlands. According to our bylaws, the Board of Directors needs to report about for instance our financials and get approval for the way we managed our organisation. Before the COVID-19 / Corona virus crisis, the usual form was a physical Member Conference. Unfortunately, this does […]
Member Conference 2020
In principle, we have planned our worldwide Member Conference on Saturday October 24, 2020 in the Netherlands. Due to the COVID-19 / Corona virus it is possible that our annual conference may not take place in the usual form where we really see each other. We have previously received requests from our foreign members to […]
United Kingdom – Nikki & Matthew Bailey
I am Nikki and my husband is Matthew. We are both Scottish but live in Wales. I am a Social Worker and Matthew is a senior Project Manager. Matthew and I are the parents of six children with ages ranging from 25yrs – 4 yrs. Alfie is our youngest child. We had an uncomplicated pregnancy […]
Russia – Anastasia
[vc_section full_width=”stretch_row” css=”.vc_custom_1585128400841{background-color: #576283 !important;}”][vc_row][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row][vc_column width=”1/3″][/vc_column][vc_column width=”2/3″][vc_empty_space][mk_fancy_title strip_tags=”true” tag_name=”h1″ color=”#ffffff” size=”60″ line_height=”90″ font_weight=”bolder” margin_bottom=”0″ font_family=”none”]Anastasia (Russia)[/mk_fancy_title][mk_divider style=”thick_solid” divider_width=”custom_width” custom_width=”70″ align=”left” border_color=”#a1aabe” visibility=”hidden-sm”][mk_fancy_title strip_tags=”true” tag_name=”h5″ color=”#ffffff” size=”16″ font_weight=”400″ margin_bottom=”0″ font_family=”none”]Patient advocate[/mk_fancy_title][/vc_column][/vc_row][vc_row][vc_column][vc_empty_space height=”64px”][/vc_column][/vc_row][/vc_section][vc_section full_width=”stretch_row” css=”.vc_custom_1585137324203{background-color: #ffffff !important;}”][vc_row][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row][vc_column width=”1/3″][vc_wp_custommenu title=”Patient advocates” nav_menu=”275″ el_class=”leftsubmenu”][/vc_column][vc_column width=”2/3″][mk_image src=”https://www.cmtc.nl/wp-content/uploads/2020/04/anastasia1-rusland.jpg” image_size=”full”][vc_column_text disable_pattern=”false” margin_bottom=”10″ css=”.vc_custom_1593679884512{margin-bottom: 0px !important;}”]Hello, my name is Anastasia! We live in […]
Poland – Dorota Blacharska
My name is Dorota Blacharska and I live in Szczecin in Poland. I’m a nurse and work in the Department of neurosurgery. I am married to Mariusz (54) and we have three children: Krzysztof (24), Dominika (20) and Ania (7). They all have HAEi and Ania has CMTC. My goal is to increase the knowledge […]
Austria – Silke Rotter
My name is Silke Rotter and I’m 39 years (2019) old. I received my education in Vienna and have worked since 2000 for the Viennese Government. In 2002 I married Alexander (1979). He works as a truck driver for a global pharmaceutical company. We have three children; they were born in 2003, 2005 and 2016. […]
Prof. Dr. Suzanne Pasmans (Netherlands) – Medical advisor
Suzanne Pasmans completed her medical training in Leiden and graduated cum laude. In 1996 she graduated from the University of Amsterdam on IgE -dependent histamine -releasing activity, and has a degree as an immunologist. At the Institute Curie, Inserm, Paris she studied molecular biological research. In 2000 she completed training as a Dermatologist /Venereal in […]
Prof. Dr. Miikka Vikkula (Belgium) – Medical advisor
Prof. Miikka Vikkula MD PhD is Co-Director of the Human Genetics de Duve Institute Human Molecular Genetics (De Duve Institute, Université Catholique de Louvain (UCL), Brussels, Belgium). Prof. Vikkula obtained his M.D. at the University of Helsinki in 1992 and his Ph.D. in molecular genetics, in 1993. He was a Research Associate Harvard Medical School […]
Prof. Dr. Chantal van der Horst (Netherlands) – Medical advisor
Since 1985 – the beginning of her training as a plastic surgeon – Prof. Dr. van der Horst has been interested in the analysis and treatment of vascular malformations and hemangiomas. She also has an interest in congenital anomalies in general. She has been a staff member at the AMC since 1989. In 1990 she […]
Dr. Patrick Kemperman (Netherlands) – Psychological advisor
Patrick Kemperman works as a dermatologist at the UMC (Academic Medical Centre) in Amsterdam, the Netherlands and the Waterlandziekenhuis in Purmerend, the Netherlands. He is a general dermatologist who focusses on psycho dermatology and itching. He is driven by a strong desire to bridge the gap between the treatment of physical and psycho social problems […]